Become an Advocate
Attention Members of Congress: To co-sponsor H.R. 2505 or S.1350, please contact Noah Jacobson in Representative Paulsen's office or Rachel Bird in Senator Coon's office.
Our 2011 Legislative Priority:
Pass the Pulmonary Fibrosis Research Enhancement Act (PFREA)(S. 1350, H.R. 2505)
Take Action Now!
Our new advocacy tool makes it easy. CLICK HERE to send your members of Congress a message in only seconds. Then recruit your friends and family!
What would passage of the PFREA accomplish for those affected by PF?
- Establish the first National Pulmonary Fibrosis Registry (See Advocate Toolkit)
- Establish a National Pulmonary Fibrosis Advisory Board
- Call for a national PF education and awareness plan
- Encourage the National Institutes of Health to expand, intensify, and coordinate the activities of the Institute with respect to research on PF
As stated in our mission, the Pulmonary Fibrosis Foundation (PFF) “advocate[s] for the pulmonary fibrosis (PF) community both locally and in Washington, D.C.” We are devoted to raising awareness of PF on Capitol Hill and endorsing legislation for increased federal funding to benefit the PF community.
We need your help to ensure that the PFREA passes!
Every time you communicate to your members of Congress it counts!
Share this information and recruit others to join our fight against pulmonary fibrosis. By working together we can make sure that pulmonary fibrosis has a place on the Congressional agenda.
Interested advocates can contact the PFF directly at 888.733.6741 or by email at info@pulmonaryfibrosis.org for further information.
