2007 - 50 Events in 50 States

Connecticut

June 24, 2007
Jennings Beach, Fairfield, Connecticut


We are attempting to raise money to honor our Grandmother
who passed away on January 11, 2007 from complications due to Pulmonary Fibrosis.

"Ann Urciuoli, 82, was born on September 12, 1924 in Fairfield, CT and was a resident of Westport, CT for over 60 years. Among Grammy’s many passions in life was her love of the beach. Ann's green thumb in the garden, and remarkable cooking abilities were just a few of her many talents. She was a loving and caring wife, mother, grandmother and great-grandmother. "
We have already set up a website for donations, through you website. Here is the link: http://www.active.com/donate/pulmonaryfibrosis/urciuoli

Please contact Jon Allard 603-490-8218 any additional information

 

For more information about Pulmonary Fibrosis call the
Pulmonary Fibrosis Foundation at: 312.587.9272

 

Previous Events

      pulmonary fibrosis ride           
 special surprise celebrity appearance ?????

When                  9-17-06

START        Blue moon grille

                   105 franklin street

                   westerly R.I.

                  10:00 am  sign up

Who?           Bikes and classic cars

 

How Much?    $20.00 per driver

                     $10.00 per passenger

                    Proceeds to   PFF         

Ending:  at  pigroast with live musicText Box: knievelkrusade.com  The mission is to raise funds and awareness in hopes that future sufferers of this disease will have a better shot at survival.   The greatest competitor in life is death        “ EVEL KNIEVEL”

 

www.pulmonaryfibrosis.org

 

kills over 40,000 annually and has no cure.

Lets go for a ride on a nice fall day to raise funds for this worthy foundation.

EVELGUYINRI@AOL.COM      401-261-5660
 

 

Board Chairman competes in Ironman Competition

 

Daniel Rose M.D, Chairman of the Board of the Pulmonary Fibrosis Foundation, will be participating in the Coeur d’Alene Ironman competition to raise money for the Pulmonary Fibrosis Foundation as part of the Janus Charity Challenge. The event will take place on June 27, 2004 in memory of his father Albert Rose who died of Idiopathic Pulmonary Fibrosis (IPF) on February 6th 2002. He had been a healthy man who never smoked. 

 

Over 200,000 individuals in the US are afflicted with IPF, and more than 40,000 die annually. There is currently no cure for pulmonary fibrosis. Treatment options are limited and usually ineffectual. The mission of the Pulmonary Fibrosis Foundation is to increase public awareness of the disease, provide support for patients and families and fund research. Prior to his death Albert Rose started the Pulmonary Fibrosis Foundation. Daniel Rose is a cardiothoracic surgeon in Bridgeport, CT. 

 

Shortly after his father's death he was diagnosed with non-Hodgkin’s Lymphoma and underwent chemotherapy. He completed his treatments in Oct. '02. He is competing in his first Ironman race at the age of 56 to honor the memory of his father who has always been an inspiration, mentor, and friend. Dan is working hard to raise funds to find a cure for this terrible disease so that other families will not have to endure the suffering that has afflicted his. 

 

An Ironman competition involves a 2.4-mile swim, 112-mile bike-ride and a 26-mile run. Please support this incredible feat by making a contribution today!  If Dan succeeds as the top fundraiser, the Janus Group will make an additional contribution – up to $10,000! Please send your donation to: Pulmonary Fibrosis Foundation, 1440 W. Washington Blvd, Chicago, IL 60607 and indicate that the gift is in support of the Ironman Race.