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2007
- 50 Events in 50 States
New
York
Previous Events

"LOVE"
TO FIND A CURE MEMORIAL TENNIS
OUTING
DATE: June 23, 2007
RAIN DATE: June
24, 2007
TIME: 2pm –
6:30pm
PRE-REGISTER BY:
June 8, 2007
LOCATION:
Cold Spring Valley Racquet Club
Woodbury Road
& East Gate Drive And
Cold Spring
Harbor, NY
$110 for players
$95 for non-players
This will be a
doubles round-robin event. The four
players with the
most points after six rounds will
play an
eight-game pro set for the championship.
To secure a spot
in the tournament, please register early.
Refreshments will
be served on arrival and a
buffet dinner
will follow the matches.
FOR MORE
INFORMATION
OR TO REGISTER
CALL:
Nancy Feldman
(516) 526-5345
nancy.feldman@yahoo.com
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PRIZES:
Trophies will be presented to
champions and finalists.
T - shirts will be provided to all
players.
And a raffle will follow the final
PARTIAL LIST OF SPONSORS






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_______________________________________________________________________________________________
Mail form and check (payable to the Pulmonary Fibrosis
Foundation) to:
Nancy Feldman
10 Floyd Lane Address
Commack, NY 11725
Phone (516) 526-5345
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T-shirt size: S_____ M_____ L_____ XL_____
______________________________________
Name
______________________________________
Address
______________________________________
______________________________________
Phone
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Fundraiser for
the Pulmonary Fibrosis Foundation
in memory of Georgia Jean Williams Gorton
who passed away this year from Pulmonary Fibrosis
after a hard fought battle

Memorial
party for Georgia Jean Williams Gorton
This event is to celebrate the life of Georgia
as well as raise money to help find a cure.
To raise awareness of the disease.
This will be a gathering of family, friends,
and those who have been touched by this devastating disease
along with anyone who would like to support a worthy cause.
Date:
June 23 2007
Texas Holdem Tounament in Memory of Georgia Jean Williams Gorton
At Verona VFW (Verona New York)
Registration starts at 4pm
Tournament at 5pm
This will be a 45 person tournament with ring games
available.
Advance ticket will be offered for $30.00
Ticket price at the door is $32.00
For Additional information contact: Mary Jane Borst at:
Mborst@twcny.rr.com
Donations may be sent
to: the Pulmonary Fibrosis Foundation, 1332 N. Halsted St. Suite
201, Chicago, IL 60622
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Allen Nella
is participating in the New York City Marathon on November
5th, 2006 in honor of his grandmother who died from
Pulmonary Fibrosis.
Right now, 200,000
Americans are living with pulmonary fibrosis. By the end of
the year, 40,000 people will die from the disease - the same
number who will die from breast cancer. Despite how rampant
the disease is, there is still very little known about it:
it's causes and, more seriously, how to treat it. In
December of 2003, I lost my grandma, Emily Shulman, to
pulmonary fibrosis. Not only did the disease ultimately take
her life, it made her extremely weak and uncomfortable while
she lived with it. To honor my grandma's life and memory, I
have decided to run the 2006 New York City Marathon. My goal
is simple: to raise awareness and money for the Pulmonary
Fibrosis Foundation. Please remember that anything you can
donate, even if it's only small, will make a difference.
Thank you. |

Emily Shulman |

You may
donate online
by going to:
www.active.com/donate/emilysfund
or you may send your
contribution to:
Pulmonary Fibrosis
Foundation
1332 N. Halsted St. Suite 201
Chicago, Illinois 60622 |
TOBY'S
TEAM - Road Trippin' to Trip up Pulmonary
Fibrosis
My Mom, Toby Neipris Wilgoren, of blessed
memory, died on Mother's Day, at the age of 59,
after a long and hard-fought battle with a
terminal lung disease called pulmonary fibrosis.
There is no cure for this deadly disease.
Unlike other, better-known causes, like cancer
or Alzheimer's, there is little research and
funding to raise awareness about pulmonary
fibrosis.
What many of you may not know is that, as it was
told to me, sometime in 1972, my parents, then
young newlyweds, put down a deposit on a mobile
home. They had a dream of driving cross-country
and living in different places across America.
Soon after putting the deposit down, however, my
Mom learned that she was pregnant with me, and
that was the end of their cross-country dream
and the beginning of a whole different
adventure...
Beginning July 1, my dear friend, Rose-Ellen and
I will be driving approximately 10,000 miles
cross-country (route to be posted soon). Every
place we see, we will be seeing for Toby, every
hike we take, we will take for her, and every
purple flower we pick, we will pick for her, as
she is in our hearts, and she never got to
fulfill this dream herself.
PLEASE help us by "sponsoring" our trip. One
penny for every mile will be a $100 donation.
Checks can be sent to The Pulmonary Fibrosis
Foundation via 516 East 86th Street, Apt. 1B,
New York, New York 10028, or you can give
directly on-line and learn more about this
disease at
www.pulmonaryfibrosis.org.
With your help, we hope to create a Toby Neipris
Wilgoren Memorial Fund at the Pulmonary Fibrosis
Foundation, allowing for more funding for
medical research and advocacy as well as support
for patients and families. All donors will be
recognized on the blog (unless you request to
remain anonymous) and will receive a Team Toby
t-shirt, as soon as they are available.
Stay tuned for frequent blog updates with route
info and photos.
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The New York State Pulmonary Fibrosis Foundation’s 3rd
Annual
Drive to a Cure
TM
Golf
Tournament & Dinner Reception
Sunday, August 20th

Valley
View Golf Course, Utica
Win…
Two Hole-in-One Challenges
from Carbone Auto Group
> win a new 2006 car
> win a vacation to Acapulco, Mexico
$500
Cash Putting Contest
Queen-size pillow top bed
from King Koil
and Metro Mattress
Golf course passes
from across the state
Flat-screen TV, DVD players
and other
electronic items
50/50 RAFFLE
And many more randomly-drawn prizes
and gifts for golfers and non-golfers
[one in four chance of winning]
Tournament Info…
Golfers: $75 [dinner-only guests: $29]
▪
Four-person Scramble [Best Ball]
▪
18 holes
of golf with cart ▪
Lunch, dinner, refreshments
▪
Team Cash
Skins ▪
1st,
2nd & 3rd place team awards
▪
Longest Drive
contests
▪
Closest-to-the-Pin contests
▪ 4
winning teams: gross and net team score winners
(male
& female)
To register, call 315-724-6512 or email info@nyspff.org
All
proceeds benefit the New York State Pulmonary Fibrosis
Foundation’s efforts to find a cure for pulmonary fibrosis.
The disease kills over 40,000 people yearly — the same as
breast cancer, and more than AIDS, and prostate and cervical
cancer.
The New York State Pulmonary Fibrosis Foundation is
headquartered in Utica. Contributions are tax-deductible
Major Sponsor Major Sponsors
About the
New York State Pulmonary Fibrosis FoundationThe New York State Pulmonary Fibrosis
Foundation (NYSPFF) is committed to finding the causes and cure
for pulmonary fibrosis, a fatal lung disease killing more than
40,000 Americans yearly. Pulmonary fibrosis kills as many
people as breast cancer – and more than AIDS, and prostate and
cervical cancer. More than 200,000 people suffer from disease.
Headquartered in Utica, New York, the NYSPFF is a 501(c)3
non-profit organization and serves as the official statewide
association for pulmonary fibrosis. It is affiliated with the
national Pulmonary Fibrosis Foundation located in Chicago,
Illinois.
The NYSPFF is working to fund research
efforts and educate New Yorkers, the medical community,
government and media about the severity and prevalence of the
incurable disease. The Drive to a CureTM
is the organization’s major statewide fundraising event of the
year. It was created in memory of Joe Maltese, Sr., who died
from pulmonary fibrosis in 2003. For more information about
pulmonary fibrosis and the NYSPFF, call 315-724-6512 or email
info@nyspff.org.
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Joseph F. Maltese,
Sr.


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Third
Annual Golf Tournament
The New York
State Pulmonary Fibrosis Foundation
450 Oakdale Avenue, Utica, NY 13502, 315.724.6512
For
Golfers and Non-Golfers, the New York State Pulmonary
Fibrosis Foundation presents "The Drive to a Cure" Golf and Reception.
Headquartered in Utica,
NY, the New York State Pulmonary Fibrosis Foundation (NYSPFF) is hosting
its 3rd annual golf/reception benefit in August, 20,
2005 at the Valley View Golf Club, Utica, New York.
This is the organization's major statewide fundraising event
of the year and was established by the family and
friends of Joseph F. Maltese, Sr., of Utica, who died from pulmonary
fibrosis at the age of 66 on October 25, 2003.
Sign-in
time: 11:00 AM
Lunch: Noon
Shotgun Start: 12:45 PM
Dinner/Awards
Reception: 6:00 PM
For more
information call:
Joseph Maltese, Jr. at:518.312.6362 |
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| Hosts:
Jon
Katz, Shane Parouse & Dave Paglia
Where: Doherty's
Pub, 215 E. 52nd St, New York, NY
When: Thursday,
January 26, 6:00pm
Phone: 212-750-7173
1/26
January Pac 10 Happy Hour
Doherty’s Pub 218 E. 52nd St
(bet 2nd and 3rd) beg @ 6P
$5 entry fee gets you a
complimentary drink and there
will be normal happy hour
drink specials as well
We'll have the back half of
the bar to ourselves
This is an event to honor the
memory of the former president
of the Greater New York Alumni
Chapter of Arizona State
University, Jim Stephens. Jim
died in 2003 of a debilitating
disease of the lungs called
Pulmonary Fibrosis. This
insipid disease breaks down
and scars the inside of the
lungs until the victim dies of
suffocation. This can take as
little as 2 years!
Over 40,000 Americans a year
die of PF (as many as die of
breast cancer)
Most cases are STILL
misdiagnosed as pneumonia,
bronchitis or asthma
There is no known cure
Despite all this, few people
have ever heard of PF. If this
continues, people will
continue to suffer from this
horrible condition without
hope for a cure. You can help
by coming to the happy hour
January 26th or by visiting
www.pulmonaryfibrosis.org to
learn more about the disease
and contributing to support
research and advocacy. This
event is sponsored by the Pac
10 Alumni of the New York
area, and organized by the
local alumni of Arizona State
University.
You will be able to learn
about PF and have an
opportunity to contribute to
the cause at the event. Thank
you for you attention and
time. Hope you can join us at
Doherty's on the 26th |
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You are invited to come out and have a good
time, and help a little known and understood cause next
Thursday January 13th.This is an event
honor the memory of the former president of the
Greater New York Alumni Chapter of Arizona State
University, Jim Stephens. Jim died last year of a debilitating disease
of the lungs called Pulmonary
Fibrosis. This insipid disease breaks down and scars
the inside of the lungs until the victim dies of
suffocation. This can take as little as 2 years!
¨
Over 40,000 Americans a year die of PF (as many as
die of breast cancer)
¨
Most cases are STILL misdiagnosed as pneumonia,
bronchitis or asthma
¨
There is no known cure
Despite all this, few people have ever heard of PF.
If this continues, people will continue to suffer from
this horrible condition without hope for a cure. You can help by coming to the happy hour
January 13th, or by visiting www.pulmonaryfibrosis.org to
learn more about the disease and contributing to support
research and advocacy.This event is sponsored by the Pac
10 Alumni of New York area, and organized by the local
alumni of Arizona State University.
Details
of the event
Where:
Black Finn (53rd Street between 2nd
and 3rd)
When:
January 13th, 6-9pm
How Much:
Entry is FREE and there will be drink specials
You will be able to learn about PF and have an
opportunity to contribute to the cause at the event.Thank
you for you attention and time. I really hope you can join
us at Black Finn on
the 13th!
*****PLEASE
RSVP TO ME AS SOON AS YOU CAN. WE NEED TO ESTIMATE THE
TURNOUT IN ADVANCE. THANKS*****
Shane Parouse
Strategies for Wealth Creation & Protection
140 Broadway - 22nd Floor
New York NY 10005
(212) 701-7919 (Direct)
sparouse@strat4wealth.com
Donations
may be sent to the Pulmonary Fibrosis Foundation, 1332 N. Halsted St.
Suite 201 Chicago, Il 60622. For more
information call 312.587.9272
Dan Rose, MD at the 2004
Coeur d'Alene Ironman

Albert Rose, founder of
the Pulmonary Fibrosis Foundation died of Pulmonary
Fibrosis on
February 6, 2002 |
Chairman of the Board of Directors of the
Pulmonary Fibrosis Foundation will compete in the The Ironman Race to be held on July 24th, 2005 in Lake
Placid, NY. He also competed in the Coeur d'Alene Ironman
in 2004
My
father, Albert Rose died from pulmonary fibrosis. Prior to
his death, he and his brother Mike Rosenzweig, Ph. D.
started the Pulmonary Fibrosis Foundation. The Foundation
funds research grants, provides patient education and
support, and has lobbied congress and the NIH for more
research funding.
There are new exciting therapies
evolving for the treatment of this dreaded and incurable
disease. Funding is essential to continue the research. I
am a physician and a fortunate cancer survivor
(non-Hodgkin's
lymphoma) and personally know the incredible benefits of
medical research. I am dedicating this race to my father
and to help continue the research so that others may ultimately
beat this disease. -- Dan Rose, M. D.
For more information about pulmonary
fibrosis or the Pulmonary Fibrosis Foundation please call
312-587-9272 or www.pulmonaryfibrosis.org
The
Ironman Race was held on July 24th, 2005 in Lake
Placid, NY.
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Joseph F. Maltese,
Sr.


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The New York
State Pulmonary Fibrosis Foundation
450 Oakdale Avenue, Utica, NY 13502, 315.724.6512
For
Golfers and Non-Golfers, the New York State Pulmonary
Fibrosis Foundation presents "The Drive to a Cure" Golf and Reception.
Headquartered in Utica,
NY, the New York State Pulmonary Fibrosis Foundation (NYSPFF) is hosting
its 2nd annual golf/reception benefit in August, 21,
2005 at the Valley View Golf Club, Utica, New York.
This is the organization's major statewide fundraising event
of the year and was established by the family and
friends of Joseph F. Maltese, Sr., of Utica, who died from pulmonary
fibrosis at the age of 66 on October 25, 2003.
Sign-in
time: 11:00 AM
Lunch: Noon
Shotgun Start: 12:45 PM
Dinner/Awards
Reception: 6:00 PM
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Latest update January 20, 2006
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