2008 - 50 Events in 50 States

New York

Jack Lim, a Pulmonary Fibrosis Patient Will Participate in New York City Marathon on
November 2, 2008 to Raise Awareness of

Pulmonary Fibrosis
Text Box: www.pulmonaryfibrosis.org   Pulmonary Fibrosis is a disease in which the lungs become scarred. As the scarring increases it inhibits the patients ability to breathe. At this time there is no effective treatment for the disease that has been approved by the FDA. There are research centers in the United States, Europe and Japan that are working on medications to fight Pulmonary Fibrosis. Most are in the experimental stage and will require a great deal more research before they can be utilized to treat those afflicted with the disease. The Pulmonary Fibrosis Foundation has donated almost two million dollars to support this research but much more is needed if we are to find a cure. Donations may be made to the Pulmonary Foundation Foundation
1332 N. Halsted St. Suite 201,
Chicago, IL 60642.
Phone 312.587.9272
for more info:

 

Previous  Events

Second Annual Ruth Lang

Memorial Tennis Outing

Proceeds to Benefit The

Pulmonary Fibrosis Foundation

To be held on the beautiful red clay courts

of the Cold Spring Valley Racquet Club

in Cold Spring Hills, New York

 

Date: Saturday, July 26, 2008 (rain date: Sunday, July 27, 2008)

Time: 1pm to 6pm

Fee: $125 for players; $110 for non-players*

(includes refreshments, dinner, beer, wine, T-shirts)

Mail checks, payable to the Pulmonary Fibrosis

Foundation, to:

  • Nancy Feldman
  • 10 Floyd Lane
  • Commack, NY 11725
    •

    If you have any questions, please call or e-mail Nancy Feldman at 516-526-5345 or nancy.feldman@yahoo.com.

    *If you can't attend but would like to contribute, donations are greatly appreciated.

    Fundraiser for the Pulmonary Fibrosis Foundation
    in memory of Georgia Jean Williams Gorton
    who passed away this year from Pulmonary Fibrosis
    after a hard fought battle

    Memorial party for Georgia Jean Williams Gorton

    This event is to celebrate the life of Georgia
    as well as raise money to help find a cure.  
    To raise awareness of the disease.  
    This will be a gathering of family, friends,  
    and those  who have been touched by this devastating disease
    along with anyone who would like to support a worthy cause.  

    Date: June 23  2007

     

    Texas Holdem Tounament in Memory of Georgia Jean Williams Gorton
    At Verona VFW  (Verona New York)
     

    Registration starts at 4pm
    Tournament at 5pm
     

    This will be a 45 person tournament with ring games available.  
    Advance ticket will be offered for $30.00
    Ticket price at the door is $32.00


    For Additional information contact: Mary Jane Borst at:
    Mborst@twcny.rr.com

    Donations may be sent to: the Pulmonary Fibrosis Foundation, 1332 N. Halsted St. Suite 201, Chicago, IL 60622

    Allen Nella is participating in the New York City Marathon on November 5th, 2006 in honor of his grandmother who died from Pulmonary Fibrosis.

    Right now, 200,000 Americans are living with pulmonary fibrosis. By the end of the year, 40,000 people will die from the disease - the same number who will die from breast cancer. Despite how rampant the disease is, there is still very little known about it: it's causes and, more seriously, how to treat it. In December of 2003, I lost my grandma, Emily Shulman, to pulmonary fibrosis. Not only did the disease ultimately take her life, it made her extremely weak and uncomfortable while she lived with it. To honor my grandma's life and memory, I have decided to run the 2006 New York City Marathon. My goal is simple: to raise awareness and money for the Pulmonary Fibrosis Foundation. Please remember that anything you can donate, even if it's only small, will make a difference. Thank you.


    Emily Shulman

     

    You may donate online
    by going to:
    www.active.com/donate/emilysfund

    or you may send your
    contribution to:

    Pulmonary Fibrosis Foundation
    1332 N. Halsted St. Suite 201
    Chicago, Illinois 60622
     

     

    TOBY'S TEAM - Road Trippin' to Trip up Pulmonary Fibrosis

     

    My Mom, Toby Neipris Wilgoren, of blessed memory, died on Mother's Day, at the age of 59, after a long and hard-fought battle with a terminal lung disease called pulmonary fibrosis.

     

    There is no cure for this deadly disease.  Unlike other, better-known causes, like cancer or Alzheimer's, there is little research and funding  to raise awareness about pulmonary fibrosis.

     

    What many of you may not know is that, as it was told to me, sometime in 1972, my parents, then young newlyweds, put down a deposit on a mobile home.  They had a dream of driving cross-country and living in different places across America.  Soon after putting the deposit down, however, my Mom learned that she was pregnant with me, and that was the end of their cross-country dream and the beginning of a whole different adventure...

     

    Beginning July 1, my dear friend, Rose-Ellen and I will be driving approximately 10,000 miles cross-country (route to be posted soon). Every place we see, we will be seeing for Toby, every hike we take, we will take for her, and every purple flower we pick, we will pick for her, as she is in our hearts, and she never got to fulfill this dream herself.

     

    PLEASE help us by "sponsoring" our trip. One penny for every mile will be a $100 donation. Checks can be sent to The Pulmonary Fibrosis Foundation via 516 East 86th Street, Apt. 1B, New York, New York 10028, or you can give directly on-line and learn more about this disease at www.pulmonaryfibrosis.org.

     

    With your help, we hope to create a Toby Neipris Wilgoren Memorial Fund at the Pulmonary Fibrosis Foundation, allowing for more funding for medical research and advocacy as well as support for patients and families. All donors will be recognized on the blog (unless you request to remain anonymous) and will receive a Team Toby t-shirt, as soon as they are available.

     

    Stay tuned for frequent blog updates with route info and photos.

    Thank you,

    Third Annual Golf Tournament

    The New York State Pulmonary Fibrosis Foundation 
    450 Oakdale Avenue, Utica, NY 13502, 315.724.6512

    For Golfers and Non-Golfers, the New York State Pulmonary Fibrosis Foundation presents "The Drive to a Cure" Golf and Reception. 

    Headquartered in Utica, NY, the New York State Pulmonary Fibrosis Foundation (NYSPFF) is hosting its 3rd annual golf/reception benefit in August, 20, 2005 at the Valley View Golf Club, Utica, New York. 

    This is the organization's major statewide fundraising event of the year and was established by the family and friends of Joseph F. Maltese, Sr., of Utica, who died from pulmonary fibrosis at the age of 66 on October 25, 2003. 

    Sign-in time: 11:00 AM
    Lunch: Noon
    Shotgun Start: 12:45 PM

    Dinner/Awards Reception: 6:00 PM

    For more information call:
    Joseph Maltese, Jr. at:518.312.6362

     

    January Pac 10 Happy Hour
    Hosts:  Jon Katz, Shane Parouse & Dave Paglia

    Where:  Doherty's Pub, 215 E. 52nd St, New York, NY

    When:  Thursday, January 26, 6:00pm

    Phone:  212-750-7173

     
    1/26 January Pac 10 Happy Hour

    Doherty’s Pub 218 E. 52nd St (bet 2nd and 3rd) beg @ 6P

    $5 entry fee gets you a complimentary drink and there will be normal happy hour drink specials as well

    We'll have the back half of the bar to ourselves

    This is an event to honor the memory of the former president of the Greater New York Alumni Chapter of Arizona State University, Jim Stephens. Jim died in 2003 of a debilitating disease of the lungs called Pulmonary Fibrosis. This insipid disease breaks down and scars the inside of the lungs until the victim dies of suffocation. This can take as little as 2 years!

    Over 40,000 Americans a year die of PF (as many as die of breast cancer)
    Most cases are STILL misdiagnosed as pneumonia, bronchitis or asthma
    There is no known cure

    Despite all this, few people have ever heard of PF. If this continues, people will continue to suffer from this horrible condition without hope for a cure. You can help by coming to the happy hour January 26th or by visiting www.pulmonaryfibrosis.org to learn more about the disease and contributing to support research and advocacy. This event is sponsored by the Pac 10 Alumni of the New York area, and organized by the local alumni of Arizona State University.

    You will be able to learn about PF and have an opportunity to contribute to the cause at the event. Thank you for you attention and time. Hope you can join us at Doherty's on the 26th

     

    You are invited to come out and have a good time, and help a little known and understood cause next Thursday January 13th.This is an event honor the memory of the former president of the Greater New York Alumni Chapter of Arizona State University, Jim Stephens. Jim died last year of a debilitating disease of the lungs called Pulmonary Fibrosis. This insipid disease breaks down and scars the inside of the lungs until the victim dies of suffocation. This can take as little as 2 years!

     ¨       Over 40,000 Americans a year die of PF (as many as die of breast cancer)
     ¨       Most cases are STILL misdiagnosed as pneumonia, bronchitis or asthma
     ¨       There is no known cure

     Despite all this, few people have ever heard of PF. If this continues, people will continue to suffer from this horrible condition without hope for a cure. You can help by coming to the happy hour January 13th, or by visiting www.pulmonaryfibrosis.org to learn more about the disease and contributing to support research and advocacy.This event is sponsored by the Pac 10 Alumni of New York area, and organized by the local alumni of Arizona State University.

    Details of the event
    Where:             Black Finn (53rd Street between 2nd and 3rd)
    When:              January 13th, 6-9pm
    How Much:      Entry is FREE and there will be drink specials

     You will be able to learn about PF and have an opportunity to contribute to the cause at the event.Thank you for you attention and time. I really hope you can join us at Black Finn on the 13th!

    *****PLEASE RSVP TO ME AS SOON AS YOU CAN. WE NEED TO ESTIMATE THE TURNOUT IN ADVANCE. THANKS***** Shane Parouse

    Strategies for Wealth Creation & Protection
    140 Broadway - 22nd Floor
    New York NY 10005
    (212) 701-7919 (Direct)
    sparouse@strat4wealth.com

    Donations may be sent to the Pulmonary Fibrosis Foundation, 1332 N. Halsted St. Suite 201 Chicago, Il 60622. For more information call 312.587.9272  

     

     Dan Rose, MD at the 2004 Coeur d'Alene Ironman

    Chairman of the Board of Directors of the Pulmonary Fibrosis    

    on July 24th, 2005 in Lake Placid, NY. He also competed in the Coeur d'Alene Ironman in 2004

    My father, Albert Rose died from pulmonary fibrosis. Prior to his death, he and his brother Mike Rosenzweig, Ph. D. started the Pulmonary Fibrosis Foundation. The Foundation funds research grants, provides patient education and support, and has lobbied congress and the NIH for more research funding. 

    There are new exciting therapies evolving for the treatment of this dreaded and incurable disease. Funding is essential to continue the research. I am a physician and a fortunate cancer survivor (non-Hodgkin's lymphoma) and personally know the incredible benefits of medical research. I am dedicating this race to my father and to help continue the research so that others may ultimately beat this disease.   -- Dan Rose, M. D.

    For more information about pulmonary fibrosis or the Pulmonary Fibrosis Foundation please call 312-587-9272 or www.pulmonaryfibrosis.org  

    The Ironman Race was held on July 24th, 2005 in Lake Placid, NY. 

     

      Albert Rose, founder of the Pulmonary Fibrosis Foundation died of Pulmonary Fibrosis on February 6, 2002

     

      Joseph F. Maltese, Sr.

     

    The New York State Pulmonary Fibrosis Foundation 
    450 Oakdale Avenue, Utica, NY 13502, 315.724.6512

    For Golfers and Non-Golfers, the New York State Pulmonary Fibrosis Foundation presents "The Drive to a Cure" Golf and Reception. 

    Headquartered in Utica, NY, the New York State Pulmonary Fibrosis Foundation (NYSPFF) is hosting its 2nd annual golf/reception benefit in August, 21, 2005 at the Valley View Golf Club, Utica, New York.  This is the organization's major statewide fundraising event of the year and was established by the family and friends of Joseph F. Maltese, Sr., of Utica, who died from pulmonary fibrosis at the age of 66 on October 25, 2003. 

    Sign-in time: 11:00 AM
    Lunch: Noon
    Shotgun Start: 12:45 PM

    Dinner/Awards Reception: 6:00 PM

     

    Latest update: October 30, 2008