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2008
- 50 Events in 50 States
New
York
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Jack
Lim, a Pulmonary Fibrosis Patient Will Participate in New York
City Marathon on
November 2, 2008 to Raise Awareness of
Pulmonary Fibrosis |
Pulmonary Fibrosis is a disease in which the lungs become
scarred. As the scarring increases it inhibits the patients
ability to breathe. At this time there is no effective treatment
for the disease that has been approved by the FDA. There are
research centers in the United States, Europe and Japan that are
working on medications to fight Pulmonary Fibrosis. Most are in
the experimental stage and will require a great deal more
research before they can be utilized to treat those afflicted
with the disease. The Pulmonary Fibrosis Foundation has donated
almost two million dollars to support this research but much
more is needed if we are to find a cure. Donations may be made
to the Pulmonary Foundation Foundation
1332 N. Halsted St. Suite 201,
Chicago, IL 60642.
Phone
312.587.9272
for more info: |
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Previous Events
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Second Annual Ruth Lang
Memorial Tennis Outing
Proceeds to Benefit The
Pulmonary Fibrosis Foundation
To be held on the beautiful red clay
courts
of the Cold Spring Valley Racquet Club
in Cold Spring Hills, New York
Date: Saturday, July 26, 2008 (rain date:
Sunday, July 27, 2008)
Time: 1pm to 6pm
Fee: $125 for players; $110 for non-players*
(includes refreshments, dinner, beer, wine,
T-shirts)
Mail checks, payable to the Pulmonary
Fibrosis
Foundation, to:
Nancy Feldman
10 Floyd Lane
Commack, NY 11725
If you have any questions, please call or e-mail
Nancy Feldman at 516-526-5345 or nancy.feldman@yahoo.com.
*If you can't attend but would like to contribute,
donations are greatly appreciated. |
Fundraiser for
the Pulmonary Fibrosis Foundation
in memory of Georgia Jean Williams Gorton
who passed away this year from Pulmonary Fibrosis
after a hard fought battle

Memorial
party for Georgia Jean Williams Gorton
This event is to celebrate the life of Georgia
as well as raise money to help find a cure.
To raise awareness of the disease.
This will be a gathering of family, friends,
and those who have been touched by this devastating disease
along with anyone who would like to support a worthy cause.
Date:
June 23 2007
Texas Holdem Tounament in Memory of Georgia Jean Williams Gorton
At Verona VFW (Verona New York)
Registration starts at 4pm
Tournament at 5pm
This will be a 45 person tournament with ring games
available.
Advance ticket will be offered for $30.00
Ticket price at the door is $32.00
For Additional information contact: Mary Jane Borst at:
Mborst@twcny.rr.com
Donations may be sent
to: the Pulmonary Fibrosis Foundation, 1332 N. Halsted St. Suite
201, Chicago, IL 60622
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Allen Nella
is participating in the New York City Marathon on November
5th, 2006 in honor of his grandmother who died from
Pulmonary Fibrosis.
Right now, 200,000
Americans are living with pulmonary fibrosis. By the end of
the year, 40,000 people will die from the disease - the same
number who will die from breast cancer. Despite how rampant
the disease is, there is still very little known about it:
it's causes and, more seriously, how to treat it. In
December of 2003, I lost my grandma, Emily Shulman, to
pulmonary fibrosis. Not only did the disease ultimately take
her life, it made her extremely weak and uncomfortable while
she lived with it. To honor my grandma's life and memory, I
have decided to run the 2006 New York City Marathon. My goal
is simple: to raise awareness and money for the Pulmonary
Fibrosis Foundation. Please remember that anything you can
donate, even if it's only small, will make a difference.
Thank you. |

Emily Shulman |

You may
donate online
by going to:
www.active.com/donate/emilysfund
or you may send your
contribution to:
Pulmonary Fibrosis
Foundation
1332 N. Halsted St. Suite 201
Chicago, Illinois 60622 |
TOBY'S
TEAM - Road Trippin' to Trip up Pulmonary
Fibrosis
My Mom, Toby Neipris Wilgoren, of blessed
memory, died on Mother's Day, at the age of 59,
after a long and hard-fought battle with a
terminal lung disease called pulmonary fibrosis.
There is no cure for this deadly disease.
Unlike other, better-known causes, like cancer
or Alzheimer's, there is little research and
funding to raise awareness about pulmonary
fibrosis.
What many of you may not know is that, as it was
told to me, sometime in 1972, my parents, then
young newlyweds, put down a deposit on a mobile
home. They had a dream of driving cross-country
and living in different places across America.
Soon after putting the deposit down, however, my
Mom learned that she was pregnant with me, and
that was the end of their cross-country dream
and the beginning of a whole different
adventure...
Beginning July 1, my dear friend, Rose-Ellen and
I will be driving approximately 10,000 miles
cross-country (route to be posted soon). Every
place we see, we will be seeing for Toby, every
hike we take, we will take for her, and every
purple flower we pick, we will pick for her, as
she is in our hearts, and she never got to
fulfill this dream herself.
PLEASE help us by "sponsoring" our trip. One
penny for every mile will be a $100 donation.
Checks can be sent to The Pulmonary Fibrosis
Foundation via 516 East 86th Street, Apt. 1B,
New York, New York 10028, or you can give
directly on-line and learn more about this
disease at
www.pulmonaryfibrosis.org.
With your help, we hope to create a Toby Neipris
Wilgoren Memorial Fund at the Pulmonary Fibrosis
Foundation, allowing for more funding for
medical research and advocacy as well as support
for patients and families. All donors will be
recognized on the blog (unless you request to
remain anonymous) and will receive a Team Toby
t-shirt, as soon as they are available.
Stay tuned for frequent blog updates with route
info and photos.
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Third
Annual Golf Tournament
The New York
State Pulmonary Fibrosis Foundation
450 Oakdale Avenue, Utica, NY 13502, 315.724.6512
For
Golfers and Non-Golfers, the New York State Pulmonary
Fibrosis Foundation presents "The Drive to a Cure" Golf and Reception.
Headquartered in Utica,
NY, the New York State Pulmonary Fibrosis Foundation (NYSPFF) is hosting
its 3rd annual golf/reception benefit in August, 20,
2005 at the Valley View Golf Club, Utica, New York.
This is the organization's major statewide fundraising event
of the year and was established by the family and
friends of Joseph F. Maltese, Sr., of Utica, who died from pulmonary
fibrosis at the age of 66 on October 25, 2003.
Sign-in
time: 11:00 AM
Lunch: Noon
Shotgun Start: 12:45 PM
Dinner/Awards
Reception: 6:00 PM
For more
information call:
Joseph Maltese, Jr. at:518.312.6362 |
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| Hosts:
Jon
Katz, Shane Parouse & Dave Paglia
Where: Doherty's
Pub, 215 E. 52nd St, New York, NY
When: Thursday,
January 26, 6:00pm
Phone: 212-750-7173
1/26
January Pac 10 Happy Hour
Doherty’s Pub 218 E. 52nd St
(bet 2nd and 3rd) beg @ 6P
$5 entry fee gets you a
complimentary drink and there
will be normal happy hour
drink specials as well
We'll have the back half of
the bar to ourselves
This is an event to honor the
memory of the former president
of the Greater New York Alumni
Chapter of Arizona State
University, Jim Stephens. Jim
died in 2003 of a debilitating
disease of the lungs called
Pulmonary Fibrosis. This
insipid disease breaks down
and scars the inside of the
lungs until the victim dies of
suffocation. This can take as
little as 2 years!
Over 40,000 Americans a year
die of PF (as many as die of
breast cancer)
Most cases are STILL
misdiagnosed as pneumonia,
bronchitis or asthma
There is no known cure
Despite all this, few people
have ever heard of PF. If this
continues, people will
continue to suffer from this
horrible condition without
hope for a cure. You can help
by coming to the happy hour
January 26th or by visiting
www.pulmonaryfibrosis.org to
learn more about the disease
and contributing to support
research and advocacy. This
event is sponsored by the Pac
10 Alumni of the New York
area, and organized by the
local alumni of Arizona State
University.
You will be able to learn
about PF and have an
opportunity to contribute to
the cause at the event. Thank
you for you attention and
time. Hope you can join us at
Doherty's on the 26th |
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You are invited to come out and have a good
time, and help a little known and understood cause next
Thursday January 13th.This is an event
honor the memory of the former president of the
Greater New York Alumni Chapter of Arizona State
University, Jim Stephens. Jim died last year of a debilitating disease
of the lungs called Pulmonary
Fibrosis. This insipid disease breaks down and scars
the inside of the lungs until the victim dies of
suffocation. This can take as little as 2 years!
¨
Over 40,000 Americans a year die of PF (as many as
die of breast cancer)
¨
Most cases are STILL misdiagnosed as pneumonia,
bronchitis or asthma
¨
There is no known cure
Despite all this, few people have ever heard of PF.
If this continues, people will continue to suffer from
this horrible condition without hope for a cure. You can help by coming to the happy hour
January 13th, or by visiting www.pulmonaryfibrosis.org to
learn more about the disease and contributing to support
research and advocacy.This event is sponsored by the Pac
10 Alumni of New York area, and organized by the local
alumni of Arizona State University.
Details
of the event
Where:
Black Finn (53rd Street between 2nd
and 3rd)
When:
January 13th, 6-9pm
How Much:
Entry is FREE and there will be drink specials
You will be able to learn about PF and have an
opportunity to contribute to the cause at the event.Thank
you for you attention and time. I really hope you can join
us at Black Finn on
the 13th!
*****PLEASE
RSVP TO ME AS SOON AS YOU CAN. WE NEED TO ESTIMATE THE
TURNOUT IN ADVANCE. THANKS*****
Shane Parouse
Strategies for Wealth Creation & Protection
140 Broadway - 22nd Floor
New York NY 10005
(212) 701-7919 (Direct)
sparouse@strat4wealth.com
Donations
may be sent to the Pulmonary Fibrosis Foundation, 1332 N. Halsted St.
Suite 201 Chicago, Il 60622. For more
information call 312.587.9272
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Dan Rose, MD at the 2004 Coeur d'Alene Ironman
Chairman of the Board of Directors of the
Pulmonary Fibrosis
on July 24th, 2005 in Lake
Placid, NY. He also competed in the Coeur d'Alene Ironman
in 2004
My
father, Albert Rose died from pulmonary fibrosis. Prior to
his death, he and his brother Mike Rosenzweig, Ph. D.
started the Pulmonary Fibrosis Foundation. The Foundation
funds research grants, provides patient education and
support, and has lobbied congress and the NIH for more
research funding.
There are new exciting therapies
evolving for the treatment of this dreaded and incurable
disease. Funding is essential to continue the research. I
am a physician and a fortunate cancer survivor
(non-Hodgkin's
lymphoma) and personally know the incredible benefits of
medical research. I am dedicating this race to my father
and to help continue the research so that others may ultimately
beat this disease. -- Dan Rose, M. D.
For more information about pulmonary
fibrosis or the Pulmonary Fibrosis Foundation please call
312-587-9272 or www.pulmonaryfibrosis.org
The
Ironman Race was held on July 24th, 2005 in Lake
Placid, NY.

Albert Rose, founder of the Pulmonary
Fibrosis Foundation died of Pulmonary Fibrosis on February 6, 2002
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Joseph F. Maltese,
Sr.
The New York
State Pulmonary Fibrosis Foundation
450 Oakdale Avenue, Utica, NY 13502, 315.724.6512
For
Golfers and Non-Golfers, the New York State Pulmonary
Fibrosis Foundation presents "The Drive to a Cure" Golf and Reception.
Headquartered in Utica,
NY, the New York State Pulmonary Fibrosis Foundation (NYSPFF) is hosting
its 2nd annual golf/reception benefit in August, 21,
2005 at the Valley View Golf Club, Utica, New York.
This is the organization's major statewide fundraising event
of the year and was established by the family and
friends of Joseph F. Maltese, Sr., of Utica, who died from pulmonary
fibrosis at the age of 66 on October 25, 2003.
Sign-in
time: 11:00 AM
Lunch: Noon
Shotgun Start: 12:45 PM
Dinner/Awards
Reception: 6:00 PM
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Latest update:
October 30, 2008
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