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Online Support Communities

Online Support Communities

Find support. Give support. Get support.

Online support groups are a great way for you, your caregivers, family members, and friends to virtually connect for support and information.

If you are not able to attend an in-person group, or simply want additional interactions between meetings, consider joining one of the Pulmonary Fibrosis Foundation’s online support communities.


About PatientsLikeMe

PatientsLikeMe is a patient network that improves lives and a real-time research platform that advances medicine. Through the network, patients connect with others who have the same disease or condition and track and share their own experiences. In the process, they generate data about the real-world nature of disease that help researchers, pharmaceutical companies, regulators, providers, and nonprofits develop more effective products, services, and care. With more than 400,000 members, PatientsLikeMe is a trusted source for real-world disease information and a clinically robust resource that has published more than 70 research studies. 


Connect with IPF Patients Globally! 

The Pulmonary Fibrosis Foundation has partnered with the European Organization for Rare Diseases (EURODIS) and the National Organization for Rare Diseases (NORD) to allow patients with rare diseases to connect globally.

Join the online community at RareConnect and join others living with pulmonary fibrosis. This online community provides members with the ability to globally communicate with other individuals. Members may post in English, German, Spanish, French or Italian. To translate a post that is not in your native language, simply select "request to translate."


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