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- Summit 2019: San Antonio, TX
- Full Program Schedule
Nov
07
Thursday
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Nurses and Allied Health Network (CE/ANCC, pre-registration required)
- Healthcare Professionals
PRE-REGISTRATION REQUIRED. MAXIMUM CAPACITY: 100
Location: Iris - Lily- Welcome - Pauline Bianchi, RN, BSN
- Overview of ILD - Carolyn Spada, RN, BSN & Jennifer Hayes, RN, BSN
- Definition
- How do I recognize ILD in my patient
- Symptoms/presentation
- Outcomes
- Major ILD categories
- ILD Diagnosis - Wendi Mason, MSN, RN, ACNP-BC
- Diagnostic workup
- H&P
- Exposure history
- Outcomes
- Serology
- PFTs
- HRCTs
- SLB
- Genetic testing and biomarkers
- Challenges of ILD Management
- Drug Therapy - Anne Turner, RN4, BSN, JD
- Oxygen - Susan Jacobs, RN, MS
- Pulmonary Rehab - Karen S. Van Kerkhove, BSN, RN
- Management of Comorbidity - Julie A. Porcelli, RN, MSN, CNL
- Lung Transplant - Rebekah Edwards, DNP, FNP-C
- Palliative Care - Kathleen Lindell, PhD, RN, ATSF, FAAN
- Successful Management Strategies - Lori Flint, RN, BSN & Janell Reichuber, RN, BSN
- Treat, transplant, trials, transition
- PFF Updates - Pauline Bianchi, RN, BSN
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Community Pulmonologists and ILD Fellows (CME, pre-registration required)
- Healthcare Professionals
PRE-REGISTRATION REQUIRED. MAXIMUM CAPACITY: 140
Location: Cibolo 8-10
Session Chair: Anoop M. Nambiar, MD, MS
- Welcome - Anoop M. Nambiar, MD, MS
- Practical approach to the evaluation of ILD - Lisa Lancaster, MD
- Environmental links to ILD - Mridu Gulati, MD
- Genetics of ILD - Jonathan Kropski, MD
- Use of HRCT in ILD and IPF - Santiago Restrepo, MD
- Lung biopsy: transbronchial, cryobiopsy, and surgical - Fayez Kheir, MD
- New IPF Diagnostic Guidelines: Fleischner vs. ATS - Ganesh Raghu, MD
- What’s new in CTD-ILDs? - Tessy Paul, MD
- Pharmacologic therapies for IPF - Mary Beth Scholand, MD
- Lung Transplantation: who should be referred and when? - Kathleen Lindell, PhD, RN
- PH-ILD: does treatment improve outcomes? - Steve Nathan, MD
- Patient-focused management for the ILD patient - Deborah Levine, MD
- Interesting cases & Multidisciplinary Team Simulation - Joao A. de Andrade
- Panel Discussion: Ayodeji Adegunsoye, MD, Joyce Johnson, MD, Steven Nathan, MD, Ganesh Raghu, MD, and Santiago Restrepo, MD
- All group Q&A - Panel
Lunch is included. -
Patient and Caregiver Lunch: Idiopathic Pulmonary Fibrosis Management & Patient Perspectives — Sponsored by Genentech
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
- Transplant Recipients and Individuals Who Lost a Loved One
Location: Larkspur-Indian Paintbrush Meeting Room -
Pulmonary Fibrosis Overview and Introduction to the PFF
- Recently Diagnosed Patients and Their Caregivers
Location: Cibolo 1-3- Overview of pulmonary fibrosis
- What is pulmonary fibrosis? - Joyce Lee, MD
- Causes and classification of pulmonary fibrosis - Joyce Lee, MD
- Testing and monitoring in pulmonary fibrosis - Joyce Lee, MD
- Symptom management - Wendi Mason, MSN, NP
- Case Study - Erica Farrand, MD
- Introduction to the PFF and Care Center Network - Pauline Bianchi, BSN, RN
- Panel Q&A - Joyce Lee, MD; Wendi Mason, MSN, NP; Erica Farrand, MD; Pauline Bianchi, BSN, RN
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PFF Care Center Network Meeting - Closed Meeting
- Healthcare Professionals
Location: Periwinkle-Verbena -
PFF Patient Registry Meeting - Closed Meeting
- Healthcare Professionals
Location: Periwinkle-Verbena -
Welcome Reception and Poster Presentation
- Healthcare Professionals
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
- Transplant Recipients and Individuals Who Lost a Loved One
Location: Cibolo Ballroom
Scientific abstracts from both academia and industry
Nov
08
Friday
-
Breakfast
- Healthcare Professionals
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
- Transplant Recipients and Individuals Who Lost a Loved One
Location: Cibolo Ballroom -
Moving Forward Together
- Healthcare Professionals
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
- Transplant Recipients and Individuals Who Lost a Loved One
Location: Grand Oaks Ballroom -
Plenary Session: Translational Genomics: The Future is Now
- Healthcare Professionals
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
- Transplant Recipients and Individuals Who Lost a Loved One
Location: Grand Oaks Ballroom- Welcome - Greg Cosgrove, MD & Christine Kim Garcia, MD
- KEYNOTE: Translational Genomics: The Future is Now - Edith Perez, MD
- Impact of telomere length and mutations on treatment and transplant responses in pulmonary fibrosis - Christine Kim Garcia, MD
- Cell-based precision medicine approaches to pulmonary fibrosis – Insight from the IPF Cell Atlas - Naftali Kaminski, MD
- Integration of genetic information in clinical trial design for precision medicine - Imre Noth, MD
- Panel Q&A
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FDA-Approved Therapies for IPF
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
Location: Grand Oaks A-C
Session Chair: Pauline Bianchi, RN, BSN
Speaker: Prema Menon, MD, PhD -
Grief Writing Workshop Part 1 - Reclaiming Your Life through Grief Writing
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
- Transplant Recipients and Individuals Who Lost a Loved One
Location : Grand Oaks N - P
Session Chair - Laura Devitt
Speaker - Pennie Hunt
A two-part workshop to encourage finding the words for emotions, feelings and fears and putting them on paper. Participants are encouraged to attend both the morning and the afternoon sessions. -
Senescence
- Healthcare Professionals
Location: Grand Oaks Ballroom
Session Chair - David Lynch, MB- The role of senescence in driving the pathology of aging-related diseases - Nicolas Musi, MD
- What cells in the IPF lung are senescent and why does it matter? - Melanie Koenigshoff, MD, PhD
- The effects of senolytics in animal models of PF - Cory Hogaboam, PhD
- Senolytics put to the test for IPF in a clinical trial - Anoop M. Nambiar, MD, MS
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Preparing for the Future
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
Location: Grand Oaks D-F
Session Chair - Krishna Thavarajah, MD- Palliative care - Kathleen O. Lindell, PhD, RN, ATSF
- Hospice care - Kathleen O. Lindell, PhD, RN, ATSF
- Advance directives - Kathleen O. Lindell, PhD, RN, ATSF
- Estate planning - Laurie Chandler
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Lunch & Clinical Trials Innovation Series
- Healthcare Professionals
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
- Transplant Recipients and Individuals Who Lost a Loved One
Location: Grand Oaks BallroomPresentations begin promptly at 12:15 p.m
Presenting Companies:- Boehringer-Ingelheim
- Genentech
- FibroGen
- Galapagos
- Veracyte
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Research and Clinical Trials 101
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
Location: Grand Oaks D - F
Session Chair - Justin Oldham, MD- Clinical trials
- Explanation of phases - Sonye Danoff, MD
- Drug development process - Sonye Danoff, MD
- Current research update - Sonye Danoff, MD
- Stem cells - Sonye Danoff, MD
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Grief Writing Workshop Part 2 - Reclaiming Your Life through Grief Writing
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
- Transplant Recipients and Individuals Who Lost a Loved One
Location: Grand Oaks N - P
Session Chair - Laura Devitt
Speaker - Pennie Hunt
A two-part workshop to encourage finding the words for emotions, feelings and fears and putting them on paper. Participants are encouraged to attend both the morning and the afternoon sessions. -
Pulmonary Fibrosis Registries and Resources: What is in them, what have we learned, and where are we going
- Healthcare Professionals
Location: Grand Oaks Ballroom
Session Chairs - Andrew Limper, MD & Kevin Flaherty, MD- Past PFF Grant Awardee 1 - Summary Presentation - Samuel Ash, MD
- Pulmonary Fibrosis Foundation Patient Registry - Kevin Flaherty, MD, MS
- Idiopathic Pulmonary Fibrosis Prospective Outcomes (IPF-PRO) - Dan Culver, DO
- The European IPF Registry (eurIPFreg) - Andreas Gunther, MD
- PROFILE-IPF - Toby Maher, MD
- Panel discussion
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Caregiving
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
Location: Grand Oaks A - C
Session Chair - Kate Gates- Help and guidance for the new caregiver - Michael Knaapen
- Resources and services available for patients and caregivers - Michael Knaapen
- Future of caregiving - Michael Knaapen
- Caregiving panel - Karen Carns, Debbie Herndon, Michael Knaapen
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Familial Pulmonary Fibrosis and Genetic Counseling
- Recently Diagnosed Patients and Their Caregivers
- Transplant Recipients and Individuals Who Lost a Loved One
Location: Grand D - F
Session Chair - Soma S. Jyothula, MD- Identified genetic variants - Jonathan A. Kropski, MD
- Genetic counseling - Janet Talbert, MS, CGC
-
Supplemental Oxygen 101
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
Location: Grand A - C
Session Chair - Amy Case, MD- Hypoxemia - Susan Jacobs, RN, MS
- Prescription for supplemental oxygen - Susan Jacobs, RN, MS
- Myths about supplemental oxygen use - Susan Jacobs, RN, MS
- Oxygen equipment overview - Dillon Becker
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IPF Diagnostics
- Healthcare Professionals
Location: Grand Oaks Ballroom
Session Chairs - David Lynch, MB and Joseph Lasky, MD- Poster Winner 1 – Summary Presentation
- Updated HRCT diagnostic categories: rationale for the change - Jonathan Chung, MD
- New HRCT quantitative methods to enhance trial design and clinical assessment - Stephen Humphries, PhD
- Cryobiopsy for ILD diagnosis: Is it time for a sea-change? - Majid Shafiq, MD
- Where do genomic classifiers fit into the pathway for ILD diagnosis? - Joseph Lasky, MD
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Cocktail Reception
- Healthcare Professionals
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
- Transplant Recipients and Individuals Who Lost a Loved One
Location: Cibolo Ballroom -
Networking Dinner
- Healthcare Professionals
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
- Transplant Recipients and Individuals Who Lost a Loved One
Location: Grand Oaks Ballroom
Nov
09
Saturday
-
Breakfast
- Healthcare Professionals
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
- Transplant Recipients and Individuals Who Lost a Loved One
Location: Cibolo Ballroom -
Plenary Session: Clinical Trials: Empowering Patients to Participate
- Healthcare Professionals
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
- Transplant Recipients and Individuals Who Lost a Loved One
Location: Grand Oaks Ballroom- Welcome: Ayodeji Adegunsoye, MD & Justin Oldham, MD
- KEYNOTE: Opportunities for patient engagement in the development of clinical trials - Bray Patrick-Lake, MFS
- Clinician Perspective: Importance of patient-related outcomes - Jeffrey Swigris, DO
- Is the time right for changes in PF clinical trial endpoints? - Ganesh Raghu, MD
- Patient perspective - Greg Cosgrove, MD & Dave Sherry
- Panel Discussion and Audience Q&A
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Legislative Advocacy
- Healthcare Professionals
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
- Transplant Recipients and Individuals Who Lost a Loved One
Location: Grand Oaks A - C
Session Chair: Kate Gates
Speaker: Bill Schmidt -
Transcriptomics
- Healthcare Professionals
Location: Grand Oaks Ballroom
Session Chair - Naftali Kaminski, MD & Antje Prasse, MD- Poster winner 2 – Summary Presentation
- The impact of transcriptomics on our understanding of pulmonary fibrosis - Milica Vukmirovic, PhD
- Insights into the pathobiology of IPF from single cell transcriptomics - Oliver Eickelberg, MD
- BAL gene expression as an indicator of outcome and disease mechanisms in IPF - Antje Prasse, MD
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Health and Wellness with Pulmonary Fibrosis
- Healthcare Professionals
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
- Transplant Recipients and Individuals Who Lost a Loved One
Location: Grand Oaks D - F
Session Chair - Tracy Luckhardt, MD, MS- Pulmonary rehabilitation - Carol Bair, RCP
- Nutrition - Barbra Swanson - MS, ND, RDN, LD
- Management of associated conditions - Lisa Lancaster, MD
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Lunch & Clinical Trials Innovation Series
- Healthcare Professionals
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
- Transplant Recipients and Individuals Who Lost a Loved One
Location: Grand Oaks Ballroom
Presentations begin promptly at 12:15 pm
Presenting Companies:- Bristol-Myers Squibb
- Celgene
- Galecto
- Pliant
- Respivant
-
Pulmonary Fibrosis and Mental Health: A Roadmap for Coping
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
- Transplant Recipients and Individuals Who Lost a Loved One
Location: Grand D - F
Session Chair - Lindsey Bassett- Managing anxiety, stress, or depression - Deborah Gillman, PhD
- Intimacy and relationships - Deborah Gillman, PhD
- Patient’s perspective – receiving a pulmonary fibrosis diagnosis and talking to family and friends about the disease Deborah Gillman, PhD
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Fundraising for the PFF - How YOU Can Make an Impact
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
- Transplant Recipients and Individuals Who Lost a Loved One
Location: Grand N - P
Session Chair - PFF Development Team- Fundraising overview - PFF Development Team
- Why fundraising is crucial to the PF community - PFF Development Team
- How EVERYONE can make an impact on the community - PFF Development Team
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Supplemental Oxygen 101
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
Location: Grand A - C
Session Chair - Sachin Chaudhary, MD- Hypoxemia - Susan Jacobs, RN, MS
- Prescription for supplemental oxygen - Susan Jacobs, RN, MS
- Myths about supplemental oxygen use - Susan Jacobs,RN, MS
- Oxygen equipment overview - Dillon Becker
-
Autoimmune ILD and Chronic Hypersensitivity Pneumonitis (CHP) – Nuances and similarities
- Healthcare Professionals
Location: Grand Oaks Ballroom
Session Chair - Patricia Sime, MD & Mary Strek, MD- Past PFF Grant Awardee 2 – Summary Presentation - Robert Guzy, MD
- Rheumatoid lung: Informing treatment of primary and inflammatory fibrosis by understanding the pathogenesis of RAILD - Ivan Rosas, MD
- Advances in scleroderma-ILD - Mary Strek, MD
- Is IPAF really an entity unto its own: Pro/Con - Sonye Danoff, MD & Justin Oldham, MD
- CHP: have we made progress addressing the knowledge gaps in diagnosis & treatment? - Evans Fernandez Perez, MD, MS
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Therapeutic challenges and controversies in ILD
- Healthcare Professionals
Location: Grand Oaks Ballroom
Session Chair - Harold R. Collard, MD- Poster Winner 3 – Summary Presentation
- How should we approach GERD in ILD/IPF now? - Harold R. Collard, MD
- PH-ILD: past studies and future directions - Steve Nathan, MD
- Should unclassifiable ILD be treated like IPF? - Joao A. de Andrade, MD
- Progressive fibrotic ILD: will anti-fibrotics be a “one-size-fits-all” treatment? - Kevin Flaherty, MD, MS
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Meditation, Mindfulness, and Movement
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
- Transplant Recipients and Individuals Who Lost a Loved One
Location: Grand N - P
Session Chair - Lindsey Bassett
Topics Include:- Illness, stress, mindfulness, and resilience - Renée R. Fletcher, MSN, RN, CNS
- Building a mindful brain - Renée R. Fletcher, MSN, RN, CNS
- Everyday mindsets, meditation, and mindful practices - Renée R. Fletcher, MSN, RN, CNS
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Emergency Preparedness
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
Location: Grand D - F
Session Chair - Mary Strek, MD
How to prepare for natural disasters - Pam Tishendorf, CRP- Emergency kit
- Resources to use
-
The Lung Transplant Experience
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
Location: Grand Oaks A - C
Session Chair - Ayodeji Adegunsoye, MD- Lung transplant evaluation - Timothy Whelan, MD
- Lung transplant process and surgery - Timothy Whelan, MD
- Patient’s perspective - Dorothy Delarosa
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