Program
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- Summit 2021: Virtual
- Full Program Schedule
All sessions are available to view on YouTube!
The complete playlist for full-length sessions geared toward patients, caregivers, and lung transplant recipients is available for free on YouTube.
Nov
08
Monday
-
Pulmonary Fibrosis 101 & Introduction to the PFF
- Healthcare Professionals
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
- Transplant Recipients and Individuals Who Lost a Loved One
- Introduction to the Pulmonary Fibrosis Foundation - William T. Schmidt
- Overview of Pulmonary Fibrosis - Rade Tomic, MD
- What is Pulmonary Fibrosis? - Rade Tomic, MD
- Causes and Classification of Pulmonary Fibrosis - Mary Strek, MD
- Testing and Monitoring in Pulmonary Fibrosis - Dan Dilling, MD
- Symptom Management for PF Patients - Dan Dilling, MD
- Live All Group Discussion/Audience Q&A - William T. Schmidt; Rade Tomic, MD; Mary Strek, MD; Dan Dilling, MD
-
Introduction to the PFF Registry & the Care Center Network
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
- Transplant Recipients and Individuals Who Lost a Loved One
- Introduction - Jessica Shore, PhD, RN
- PFF Registry - Kevin Flaherty, MD, MS
- Overview of who/what is in the Registry - Kevin Flaherty, MD, MS
- Summary of first phase - Kevin Flaherty, MD, MS
- Plans for second phase - Junelle Speller, MBA
- How you can participate - Junelle Speller, MBA
- PFF Care Center Network - Sonye Danoff, MD; Jessica Shore, PhD, RN
- Live All Group Discussion/Audience Q&A - Kevin Flaherty, MD, MS; Junelle Speller, MBA; Sonye
- Danoff, MD; Jessica Shore, PhD, RN
-
Familial Pulmonary Fibrosis & Genetic Counseling
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
- Transplant Recipients and Individuals Who Lost a Loved One
Janet Talbert, MS, CGC
- Introduction
- Overview of Familial PF
- How to Access Genetic Counseling
- Genetic Counseling Guidelines and PFF Position Statement - How to Interpret
- Live All Group Discussion/Audience Q&A
-
Poster Session
- Healthcare Professionals
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
- Transplant Recipients and Individuals Who Lost a Loved One
- Introduction - William T. Schmidt; Joseph Lasky, MD
- Live Q&A
- Awards Presentation - Joseph Lasky, MD
-
Exhibit Hall Hours
- Healthcare Professionals
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
- Transplant Recipients and Individuals Who Lost a Loved One
Visit the Exhibit Hall to meet the Sponsors & Exhibitors of PFF Summit 2021.
Nov
09
Tuesday
-
REBROADCAST | Pulmonary Fibrosis 101 & Introduction to the PFF
- Healthcare Professionals
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
- Transplant Recipients and Individuals Who Lost a Loved One
Originally aired on November 8
- Introduction to the Pulmonary Fibrosis Foundation - William T. Schmidt
- Overview of Pulmonary Fibrosis - Rade Tomic, MD
- What is Pulmonary Fibrosis? - Rade Tomic, MD
- Causes and Classification of Pulmonary Fibrosis - Mary Strek, MD
- Testing and Monitoring in Pulmonary Fibrosis - Dan Dilling, MD
- Symptom Management for PF Patients - Dan Dilling, MD
- Live All Group Discussion/Audience Q&A - William T. Schmidt; Rade Tomic, MD; Mary Strek, MD; Dan Dilling, MD
-
REBROADCAST | Introduction to the PFF Registry & the Care Center Network
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
- Transplant Recipients and Individuals Who Lost a Loved One
Originally aired on November 8
- Introduction - Jessica Shore, PhD, RN
- PFF Registry - Kevin Flaherty, MD, MS
- Overview of who/what is in the Registry - Kevin Flaherty, MD, MS
- Summary of first phase - Kevin Flaherty, MD, MS
- Plans for second phase - Junelle Speller, MBA
- How you can participate - Junelle Speller, MBA
- PFF Care Center Network - Sonye Danoff, MD; Jessica Shore, PhD, RN
- Live All Group Discussion/Audience Q&A - Kevin Flaherty, MD, MS; Junelle Speller, MBA; Sonye
- Danoff, MD; Jessica Shore, PhD, RN
-
Plenary Session: Beyond Drugs: Therapies to Improve Quality of Life
- Healthcare Professionals
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
- Transplant Recipients and Individuals Who Lost a Loved One
Keynote Speaker | Kathleen O. Lindell, PhD, RN
- Welcome! Daily Remarks and Announcements - Joseph Lasky, MD
- KEYNOTE: Palliative Care: Spotlight on the Caregiver - Kathleen O. Lindell, PhD, RN
- Integrative Therapies - Tania T. Von Visger, PhD, APRN, CCRN, MSN
- Psychological Well-Being - Debra Sandford, PhD
- Evidence for Pulmonary Rehabilitation Benefits for Patients with ILD - Chris Garvey, FNP, MSN
- Live Panel Discussion and Audience Q&A - Kathleen O. Lindell, PhD, RN; Tania T. Von Visger, PhD, APRN, CCRN, MSN; Debra Sandford PhD; Chris Garvey FNP, MSN; Sandra Bennet Pagan
-
Exhibit Hall Hours
- Healthcare Professionals
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
- Transplant Recipients and Individuals Who Lost a Loved One
Visit the Exhibit Hall to meet the Sponsors & Exhibitors of PFF Summit 2021. -
Clinical Trials Innovation Series
- Healthcare Professionals
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
- Transplant Recipients and Individuals Who Lost a Loved One
- Introduction - Kelsey Overberg
- ENDCOV-I Study Rationale & Design (Boehringer Ingelheim) - Nina Patel, MD
- Helping the World to Breathe (Three Lakes Foundation) - University of Michigan
- ZEPHYRUS Phase 3 IPF Development Program (FibroGen) - Will Chou, MD
-
Exhibit Hall Hours
- Healthcare Professionals
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
- Transplant Recipients and Individuals Who Lost a Loved One
Visit the Exhibit Hall to meet the Sponsors & Exhibitors of PFF Summit 2021. -
Caring for Yourself when Caring for Others
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
- Transplant Recipients and Individuals Who Lost a Loved One
- Introduction - Jennifer Simokaitis
- Understanding the Unique Needs of the Caregiver - Julie Morisset, MD
- Resources and Services Available to Caregivers - Julie Morisset, MD
- How to Care for Yourself While Caring for Others - Julie Morisset, MD
- Caregiver Experience - Marianne Sarazin
- Live Discussion and Q&A - Julie Morisset, MD; Kate Yablonsky, MSW; Marianne Sarazin, Jennifer Simokaitis
-
New Diagnostic and Management Guidelines: Putting them into Practice
- Healthcare Professionals
- Introduction - Ganesh Raghu, MD
- Updates in IPF Diagnosis and Management - Chris Ryerson, MD
- Updates in HP Diagnosis and Management - Kerri Johannson, MD, MPh
- Updates in CTD-ILD Diagnosis and Management - Tamera Corte, MD, PhD
- Live Panel Discussion/Audience Q&A - Chris Ryerson, MD; Kerri Johannson, MD, MPh; Tamera Corte, MD, PhD; Ganesh Raghu, MD
-
Dealing with the Cough
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
- Transplant Recipients and Individuals Who Lost a Loved One
- Introduction - Amy Hajari Case, MD
- Understanding the mechanisms of the cough with PF - Meena Kalluri, MD
- Current treatment approaches - Corey Kershaw, MD
- Past and current research on measurement and treatment - Corey Kershaw, MD
- Live all group discussion / audience Q & A - Meena Kalluri, MD; Corey Kershaw, MD; Amy Hajari Case, MD
-
Exhibit Hall Hours
- Healthcare Professionals
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
- Transplant Recipients and Individuals Who Lost a Loved One
Visit the Exhibit Hall to meet the Sponsors & Exhibitors of PFF Summit 2021. -
Fireside Chat
- Healthcare Professionals
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
- Transplant Recipients and Individuals Who Lost a Loved One
Join PFF President and CEO, William T. Schmidt and the PFF medical team for a conversation and PFF updates. More info to come soon! -
Clarifying the ILD Diagnostic Odyssey with the Envisia Genomic Classifier
- Healthcare Professionals
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
Sponsored by Veracyte
- Introduction and Objectives - Sangeeta Bhorade, MD
- Share a patient’s challenging journey of getting an IPF diagnosis and initiating treatment - Keith Boyle, IPF Patient
- Provide an overview of the diagnostic challenges in ILD - Sam Weigt, MD
- Discuss the clinical data and utility of the Envisia Genomic Classifier - Sam Weigt, MD
- Review clinical experience with the Envisia Genomic Classifier at UCLA - Sam Weigt, MD
- Live Audience Q&A - Sam Weigt, MD; Keith Boyle; Sangeeta Bhorade, MD
This industry session is independently organized and is not eligible for CME/CE credits.
-
REBROADCAST | Familial Pulmonary Fibrosis & Genetic Counseling
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
- Transplant Recipients and Individuals Who Lost a Loved One
Originally aired on Monday November 8
- Introduction - Junelle Speller, MBA
- Overview of Familial PF - Janet Talbert, MS, CGC
- How to Access Genetic Counseling - Janet Talbert, MS, CGC
- Genetic Counseling Guidelines and PFF Position Statement - Janet Talbert, MS, CGC
- Live All Group Discussion/Audience Q&A - Junelle Speller, MBA; Janet Talbert, MS, CGC
Nov
10
Wednesday
-
REBROADCAST | Plenary Session: Beyond Drugs: Therapies to Improve Quality of Life
- Healthcare Professionals
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
- Transplant Recipients and Individuals Who Lost a Loved One
Originally aired on November 9
Keynote Speaker | Kathleen O. Lindell, PhD, RN
- Welcome! Daily Remarks and Announcements - Joseph Lasky, MD
- KEYNOTE: Palliative Care: Spotlight on the Caregiver - Kathleen O. Lindell, PhD, RN
- Integrative Therapies - Tania T. Von Visger, PhD, APRN, CCRN, MSN
- Psychological Well-Being - Debra Sandford, PhD
- Evidence for Pulmonary Rehabilitation Benefits for Patients with ILD - Chris Garvey, FNP, MSN
- Live Panel Discussion and Audience Q&A - Kathleen O. Lindell, PhD, RN; Tania T. Von Visger, PhD, APRN, CCRN, MSN; Debra Sandford PhD; Chris Garvey FNP, MSN; Sandra Bennet Pagan
-
REBROADCAST | Caring for Yourself when Caring for Others
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
- Transplant Recipients and Individuals Who Lost a Loved One
Originally aired November 9
- Introduction - Jennifer Simokaitis
- Understanding the Unique Needs of the Caregiver - Julie Morisset, MD
- Resources and Services Available to Caregivers - Julie Morisset, MD
- How to Care for Yourself While Caring for Others - Julie Morisset, MD
- Caregiver Experience - Marianne Sarazin
- Live Discussion and Q&A - Julie Morisset, MD; Kate Yablonsky, MSW; Marianne Sarazin, Jennifer Simokaitis
-
REBROADCAST | New Diagnostic and Management Guidelines: Putting them into Practice
- Healthcare Professionals
Originally aired on November 9
- Introduction - Ganesh Raghu, MD
- Updates in IPF Diagnosis and Management - Chris Ryerson, MD
- Updates in HP Diagnosis and Management - Kerri Johannson, MD, MPh
- Updates in CTD-ILD Diagnosis and Management - Tamera Corte, MD, PhD
- Live Panel Discussion/Audience Q&A - Chris Ryerson, MD; Kerri Johannson, MD, MPh; Tamera Corte, MD, PhD; Ganesh Raghu, MD
-
Exercise, Education, and Social Support
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
- Transplant Recipients and Individuals Who Lost a Loved One
- Introduction - Laura Devitt
- Pulmonary Rehabilitation: Why it Decreases Breathlessness, Hospital Admissions, and Fatigue - Kim Crilly RN, MS, CDCES
- When PF Rehab is Not Available: Other Options for Exercise - Derek Zaleski, PT, DPT
- Support Groups: Format Options, PFF Support, Starting One - Mal Doyle
- Live All Group Discussion/Audience Q&A - Kim Crilly RN, MS, CDCES; Derek Zaleski, PT, DPT; Mal Doyle; Laura Devitt
-
Research Updates: COVID-19 and More
- Healthcare Professionals
- Introduction - Maria Padilla, MD
- What We're Learning from COVID-19 and How it Relates to PF - Rob Kaner, MD
- COVID-19 vaccines - what to expect, adverse effects, side effects, how it may differently impact PF and transplanted patients, what we know since FDA approval - Amy Hajari Case, MD
- Research updates from the CCN and PFF Registry - Lisa Lancaster, MD
- Live Panel Discussion / Audience Q & A - Rob Kaner, MD; Amy Hajari Case, MD; Lisa Lancaster, MD; Maria Padilla, MD
-
Exhibit Hall Hours
- Healthcare Professionals
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
- Transplant Recipients and Individuals Who Lost a Loved One
Visit the Exhibit Hall to meet the Sponsors & Exhibitors of PFF Summit 2021. -
Clinical Trials Innovation Series
- Healthcare Professionals
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
- Transplant Recipients and Individuals Who Lost a Loved One
- Introduction - Amy Hajari-Case, MD, FCCP
- TETON Clinical Trial (United Therapeutics) - Natalie Anderson
- Integrin-mediated TGF-beta Activation Plays a Crucial Role in IPF (Pliant Therapeutics) - Gregory P. Cosgrove, MD
- Chiesi Group Profile (Chiesi Farmaceutici SpA) - Thomas Eichholtz, PhD
-
Exhibit Hall Hours
- Healthcare Professionals
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
- Transplant Recipients and Individuals Who Lost a Loved One
Visit the Exhibit Hall to meet the Sponsors & Exhibitors of PFF Summit 2021. -
Legislative Advocacy: How You Can Help the PFF Lead the Way
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
- Transplant Recipients and Individuals Who Lost a Loved One
- Introduction - Kate Gates
- How You Can Be Involved in the Legislative Process - William T. Schmidt
- Current Initiatives in the Pipeline - William T. Schmidt
- The PFF’s Focus for Future Efforts - William T. Schmidt
- Live All Group Discussion/Audience Q&A - William T. Schmidt; Kate Gates
-
Expanding Our Clinical Understanding of ILD
- Healthcare Professionals
- Introduction - Rade Tomic, MD
- Understanding the Antibodies: Connective Tissue Disease with Associated ILD - Erin Wilfong ,MD, PhD
- Rare ILDs: Pleuroparenchymal fibroelastosis (PPFE), Combined Pulmonary Fibrosis and Emphysema (CPFE), and Smoking-Related ILDs - Vincent Cottin, MD, PhD
- Patient Reported Outcome Measures - Integrating These in Research and Clinical Practice - Alyson Wong, MD
- Live Panel Discussion/Audience Q&A - Erin Wilfong ,MD, PhD; Vincent Cottin, MD, PhD; Alyson Wong, MD; Rade Tomic, MD
-
Art Therapy
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
- Transplant Recipients and Individuals Who Lost a Loved One
- Introduction - Laura Devitt
- Art Therapy - Joan Hawkins, MS
- Live Discussion/Audience Q&A
-
Grief Writing Workshop
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
- Transplant Recipients and Individuals Who Lost a Loved One
- Introduction - Kate Gates
- Interactive Grief Writing Workshop - Pennie Hunt
- Closing Remarks - Kate Gates
Nov
11
Thursday
-
REBROADCAST | Research Updates: COVID-19 and More
- Healthcare Professionals
Originally aired on November 10
- Introduction - Maria Padilla, MD
- What We're Learning from COVID-19 and How it Relates to PF - Rob Kaner, MD
- COVID-19 vaccines - what to expect, adverse effects, side effects, how it may differently impact PF and transplanted patients, what we know since FDA approval - Amy Hajari Case, MD
- Research updates from the CCN and PFF Registry - Lisa Lancaster, MD
- Live Panel Discussion / Audience Q & A - Rob Kaner, MD; Amy Hajari Case, MD; Lisa Lancaster, MD; Maria Padilla, MD
-
REBROADCAST | Legislative Advocacy: How You Can Help the PFF Lead the Way
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
- Transplant Recipients and Individuals Who Lost a Loved One
- Introduction - Kate Gates
- How You Can Be Involved in the Legislative Process - William T. Schmidt
- Current Initiatives in the Pipeline - William T. Schmidt
- The PFF’s Focus for Future Efforts - William T. Schmidt
- Live All Group Discussion/Audience Q&A - William T. Schmidt; Kate Gates
-
REBROADCAST | Expanding Our Clinical Understanding of ILD
- Healthcare Professionals
Originally aired on November 10
- Introduction - Rade Tomic, MD
- Understanding the Antibodies: Connective Tissue Disease with Associated ILD - Erin Wilfong ,MD, PhD
- Rare ILDs: Pleuroparenchymal fibroelastosis (PPFE), Combined Pulmonary Fibrosis and Emphysema (CPFE), and Smoking-Related ILDs - Vincent Cottin, MD, PhD
- Patient Reported Outcome Measures - Integrating These in Research and Clinical Practice - Alyson Wong, MD
- Live Panel Discussion/Audience Q&A - Erin Wilfong ,MD, PhD; Vincent Cottin, MD, PhD; Alyson Wong, MD; Rade Tomic, MD
-
Resources for Your Patients
- Healthcare Professionals
- Introduction - Andrew Limper, MD
- New Patient Information: What to Collect and Resources to Share - Jennifer Hayes, RN, BSN
- O2 Resources - Jennifer Hayes, RN, BSN
- Perspectives from a Social Worker: Medicare coverage (for transplant), getting signed up, covered medications for patients (financial coordinator and pharmacy) - Maciej “Mike” Bielaczyc, LCSW, CCTSW
- PFF Position Statements (genetics, stem cell treatment, HRCT, Surgical Lung Biopsy, etc.) - Andrew Limper, MD
- Live Panel Discussion/Audience Q&A - Andrew Limper, MD; Jennifer Hayes, RN, BSN; Maciej “Mike” Bielaczyc, LCSW, CCTSW
-
Supplemental Oxygen 101
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
- Transplant Recipients and Individuals Who Lost a Loved One
- Introduction - Kate Gates
- Assessment of the Need for Oxygen - Susan Jacobs, RN, MS
- Navigating the Oxygen Prescription, Various Durable Medical Equipment (DMEs), and Equipment Choices - Susan Jacobs, RN, MS
- What the ATS Oxygen Clinical Practice Guidelines Tell Us - Susan Jacobs, RN, MS
- Traveling with Oxygen - Melissa King
- DME Representative Tips for Patient Oxygen Users; Hands-On Session Led by Patient Oxygen Users - Michael S. Springman
- Live All Group Discussion/Audience Q&A - Susan Jacobs, RN, MS; Melissa King; Kate Gates; Michael S. Springman
-
Exhibit Hall Hours
- Healthcare Professionals
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
- Transplant Recipients and Individuals Who Lost a Loved One
Visit the Exhibit Hall to meet the Sponsors & Exhibitors of PFF Summit 2021. -
Clinical Trials Innovation Series
- Healthcare Professionals
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
- Transplant Recipients and Individuals Who Lost a Loved One
- Introduction - Jessica Shore, PhD, RN
- Clinical Trial in IPF at Roche/Genentech (Genentech) - Cindy Burg, PharmD, BCPS
- GB0139: Galectin-3 Inhibitor for IPF (Galecto Biotech APS) - Alison Mackinnon, PhD
-
Exhibit Hall Hours
- Healthcare Professionals
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
- Transplant Recipients and Individuals Who Lost a Loved One
Visit the Exhibit Hall to meet the Sponsors & Exhibitors of PFF Summit 2021. -
Poster Winners! Top 5 give summary presentations
- Healthcare Professionals
- Poster Winner #1
- Poster Winner #2
- Poster Winner #3
- Poster Winner #4
- Poster Winner #5
- Live Panel Discussion / Audience Q & A
-
Life After Lung Transplant
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
- Transplant Recipients and Individuals Who Lost a Loved One
- Introduction - Jamie Lederer, CRNP, MSN
- Potential Complications After Transplant - Reda Girgis, MD
- Understanding Your Medications - Carly D’Agostino, PharmD
- Revolving Changes to the Protocol - Carly D’Agostino, PharmD
- What to Expect from Side Effects - Erin Mahoney, ANP-BC
- Interactive Meet & Greet with All Session Participants - Reda Girgis, MD; Carly D’Agostino, PharmD; Erin Mahoney, ANP-BC; Jamie Lederer, CRNP, MSN
-
Preparing for the Future
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
- Transplant Recipients and Individuals Who Lost a Loved One
- Introduction - Janell Reichuber, RN
- Palliative Care: Managing Your Symptoms to Improve Quality of Life, How to Access, Maintenance, and Insurance Requirements - Heather Bachert, NP
- Hospice: What is the Difference Between Hospice and Palliative Care? - Heather Bachert, NP
- How to Talk with Family and Friends about PF - Lanier O’Hare, MSN, CRNP
- Live All Group Discussion/Audience Q&A - Heather Bachert, NP; Lanier O’Hare, MSN, CRNP; Janell Reichuber, RN
-
Putting Clinical Research into Practice: Exacerbations, Progressive Phenotypes, and More
- Healthcare Professionals
- Introduction - Mary Strek, MD
- Treatments (Existing and Emerging): Understanding the Pathogensis of Acute Exacerbations and How this Informs Therapy - Steven R. Duncan, MD
- Concept of Progressive Fibrosis as Unique Phenotype - Marlies Wijsenbeek MD, PhD
- Cellular vs. Fibrosis Nonspecific Interstitial Pneumonia (NSIP) and How this Impacts Patient Outcomes - Rishi Raj, MD
- Emerging Data about Genetics and IPF - Susan K. Mathai, MD
- Live Panel Discussion/Audience Q&A - Steven R. Duncan, MD; Marlies Wijsenbeek MD, PhD; Rishi Raj, MD; Susan K. Mathai, MD; Mary Strek, MD
-
Idiopathic Pulmonary Fibrosis: A Patient's Journey, A Physician's Perspective
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
- Transplant Recipients and Individuals Who Lost a Loved One
Sponsored by Boehringer Ingelheim Pharmaceuticals, Inc.
- Join Dr. Ayodeji Adegunsoye, a pulmonologist at the University of Chicago, as he speaks openly with Kay B. about her journey to diagnosis with idiopathic pulmonary fibrosis (IPF).
This industry session is independently organized and is not eligible for CME/CE credits.
-
The PFF Summit Social
- Healthcare Professionals
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
- Transplant Recipients and Individuals Who Lost a Loved One
This virtual event line-up features many local Chicago talent, with activities ranging from mixology to musical performances to yoga, and much more!
Learn More
Nov
12
Friday
-
REBROADCAST | Supplemental Oxygen 101
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
- Transplant Recipients and Individuals Who Lost a Loved One
Originally aired on November 11
- Introduction - Kate Gates
- Assessment of the Need for Oxygen - Susan Jacobs, RN, MS
- Navigating the Oxygen Prescription, Various Durable Medical Equipment (DMEs), and Equipment Choices - Susan Jacobs, RN, MS
- What the ATS Oxygen Clinical Practice Guidelines Tell Us - Susan Jacobs, RN, MS
- Traveling with Oxygen - Melissa King
- DME Representative Tips for Patient Oxygen Users; Hands-On Session Led by Patient Oxygen Users - Michael S. Springman
- Live All Group Discussion/Audience Q&A - Susan Jacobs, RN, MS; Melissa King; Kate Gates; Michael S. Springman
-
REBROADCAST | Resources for Your Patients
- Healthcare Professionals
Originally aired on November 11
- Introduction - Andrew Limper, MD
- New Patient Information: What to Collect and Resources to Share - Jennifer Hayes, RN, BSN
- O2 Resources - Jennifer Hayes, RN, BSN
- Perspectives from a Social Worker: Medicare coverage (for transplant), getting signed up, covered medications for patients (financial coordinator and pharmacy) - Maciej “Mike” Bielaczyc, LCSW, CCTSW
- PFF Position Statements (genetics, stem cell treatment, HRCT, Surgical Lung Biopsy, etc.) - Andrew Limper, MD
- Live Panel Discussion/Audience Q&A - Andrew Limper, MD; Jennifer Hayes, RN, BSN; Maciej “Mike” Bielaczyc, LCSW, CCTSW
-
Plenary Session: Moving PF Care Forward: Updates from Ongoing Research
- Healthcare Professionals
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
- Transplant Recipients and Individuals Who Lost a Loved One
Keynote Speaker | Gary Gibbons, MD
- Welcome! Daily Remarks and Announcements - William T. Schmidt
- KEYNOTE: The Importance of PF-related Research to the NHLBI - Gary Gibbons, MD
- PRECISIONS Trial - Fernando Martinez MD, MS
- PFF Registry - Research Results - Elizabeth Freiheit, PhD
- Research: Racial Disparities in Healthcare Outcomes for those with PF - Ayodeji Adegunsoye, MD
- Live Panel Discussion and Audience Q&A - William T. Schmidt; Gary Gibbons, MD; Fernando Martinez MD, MS; Elizabeth Freiheit, PhD; Ayodeji Adegunsoye, MD; Sean Keoni Craig
-
REBROADCAST | Familial Pulmonary Fibrosis & Genetic Counseling
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
- Transplant Recipients and Individuals Who Lost a Loved One
Originally aired on Monday November 8
- Introduction - Junelle Speller, MBA
- Overview of Familial PF - Janet Talbert, MS, CGC
- How to Access Genetic Counseling - Janet Talbert, MS, CGC
- Genetic Counseling Guidelines and PFF Position Statement - Janet Talbert, MS, CGC
- Live All Group Discussion/Audience Q&A - Junelle Speller, MBA; Janet Talbert, MS, CGC
-
Community Pulmonologists and ILD Fellows (Part One)
- Healthcare Professionals
12:00 p.m. - 4:00 p.m. CT
Agenda
- 12:00 p.m: Welcome, housekeeping, and introductions
- 12:05 p.m. - 12:20 p.m: Diagnostic Guidelines Updates-HP diagnosis, Possibly IPF update
- 12:20 p.m. - 12:35 p.m: Therapeutic updates - INBUILD, other recently completed clinical trials
- 12:35 p.m. - 12:50 p.m: Live audience Q&A for speaker panel
Break #1: 12:50 p.m. - 1:00 p.m.
- 1:00 p.m. - 1:15 p.m: Integrating Palliative Care in clinical practice- (non pharm management of ILD and symptom management)
- 1:15 p.m. - 1:30 p.m: Reconciling guidelines and clinical trials-how to integrate new information into clinical practice
- 1:30 p.m. - 1:45 p.m: Integrating ATS Oxygen CPGs into ILD care
- 1:45 p.m. - 2:00 p.m: Live audience Q&A for speaker panel
Break #2: 2:00 p.m. - 2:30 p.m.
- 2:20 p.m. - 2:45 p.m: Indications and contra-indications for transplant
- 2:45 p.m. - 3:00 p.m: Management of hospitalized patients - exacerbation / acutely ill patients with ILD, initial management with CTD-ILD, diagnosis and next steps
- 3:00 p.m. - 3:15 p.m: Live audience Q&A for speaker panel
Break #3: 3:15 p.m. - 3:25 p.m.
- 3:25 p.m. - 4:00 p.m: MDD - interesting cases and interactive discussion with live Q&A
-
Nurse and Allied Health Network (Part One)
- Healthcare Professionals
Agenda- 12:00 p.m: - 12:05 p.m Welcome
- 12:05 p.m: - 12:40 p.m: Role Development of ILD Clinical Coordinators
- 12:40 p.m: - 1:10 p.m: Understanding the diagnostic pathway in ILD: Overview of ILD and How to diagnose
- 1:10 p.m: - 1:35 p.m: Palliative Care Integration in Clinical Practice
- 1:35 p.m: - 1:45 p.m: Break
- 1:45 p.m: - 2:20 p.m: Addressing the challenges of care in ILD: Complexity of patient care, coordination of care, new medications, insurance barriers; patient’s perspectives
- 2:20 p.m: - 2:55 p.m: Patient information to Healthcare Providers
- “What I wish I would have known at the time of diagnosis?”
- Partnering Families & Caregivers with Support Resources Breakout Groups
- 2:55 p.m: - 3:00 p.m: Closing Comments
-
Exhibit Hall Hours
- Healthcare Professionals
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
- Transplant Recipients and Individuals Who Lost a Loved One
Visit the Exhibit Hall to meet the Sponsors & Exhibitors of PFF Summit 2021. -
PFF Scholars: Presentation of Novel Projects by Early Career Investigators
- Healthcare Professionals
- Introduction - Michael F. Beers, MD
- PFF Scholar - Gillian Goobie, MD
- PFF Scholar - Bridget Graney, MD
- PFF Scholar - Avraham Unterman, MD
- Live Panel Discussion/Audience Q&A
-
How to Navigate Telehealth
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
- Transplant Recipients and Individuals Who Lost a Loved One
- Introduction - Marlies Wijsenbeek, MD, PhD
- Preparing for a Telehealth Visit - Maryluz Fuentes, MD
- Home Monitoring, Home Spirometry, Remote Pulmonary Rehabilitation, and Navigating the Uncertainties - Toby Maher, MD, MSc, PhD, FRCP
- Live All Group Discussion/Audience Q&A - Maryluz Fuentes, MD; Toby Maher, MD, MSc, PhD, FRCP; Marlies Wijsenbeek, MD, PhD
-
Exhibit Hall Hours
- Healthcare Professionals
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
- Transplant Recipients and Individuals Who Lost a Loved One
Visit the Exhibit Hall to meet the Sponsors & Exhibitors of PFF Summit 2021. -
Meditation, Mindfulness, and Movement
- Healthcare Professionals
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
- Transplant Recipients and Individuals Who Lost a Loved One
- Introduction - Laura Devitt
- Illness, Stress, Mindfulness, and Resilience - Renee R. Fletcher, MSN, RN, CNS
- Building a Mindful Brain - Renee R. Fletcher, MSN, RN, CNS
- Live All Group Discussion/Audience Q&A - Renee R. Fletcher, MSN, RN, CNS; Laura Devitt
-
MDD Simulation: Interesting Cases with Interactive / Live Discussion
- Healthcare Professionals
- Introduction - Daniel Dilling, MD
- Case #1 - Lida Hariri MD, PhD
- Interactive Discussion/Live Q&A
- Case #2 - Stephen Hobbs, MD
- Interactive Discussion/Live Q&A
- Case #3 - Elizabeth Volkmann, MD
- Interactive Discussion/Live Q&A
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REBROADCAST | Life After Lung Transplant
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
- Transplant Recipients and Individuals Who Lost a Loved One
Originally aired on November 11
- Introduction - Jamie Lederer, CRNP, MSN
- Potential Complications After Transplant - Reda Girgis, MD
- Understanding Your Medications - Carly D’Agostino, PharmD
- Revolving Changes to the Protocol - Carly D’Agostino, PharmD
- What to Expect from Side Effects - Erin Mahoney, ANP-BC
- Interactive Meet & Greet with All Session Participants - Reda Girgis, MD; Carly D’Agostino, PharmD; Erin Mahoney, ANP-BC; Jamie Lederer, CRNP, MSN
Nov
13
Saturday
-
REBROADCAST | Plenary Session: Moving PF Care Forward: Updates from Ongoing Research
- Healthcare Professionals
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
- Transplant Recipients and Individuals Who Lost a Loved One
Originally aired on November 12
Keynote Speaker | Gary Gibbons, MD
- Welcome! Daily Remarks and Announcements - William T. Schmidt
- KEYNOTE: The Importance of PF-related Research to the NHLBI - Gary Gibbons, MD
- PRECISIONS Trial - Fernando Martinez MD, MS
- PFF Registry - Research Results - Elizabeth Freiheit, PhD
- Research: Racial Disparities in Healthcare Outcomes for those with PF - Ayodeji Adegunsoye, MD
- Live Panel Discussion and Audience Q&A - William T. Schmidt; Gary Gibbons, MD; Fernando Martinez MD, MS; Elizabeth Freiheit, PhD; Ayodeji Adegunsoye, MD; Sean Keoni Craig
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REBROADCAST | How to Navigate Telehealth
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
- Transplant Recipients and Individuals Who Lost a Loved One
Originally aired on November 12
- Introduction - Marlies Wijsenbeek, MD, PhD
- Preparing for a Telehealth Visit - Maryluz Fuentes, MD
- Home Monitoring, Home Spirometry, Remote Pulmonary Rehabilitation, and Navigating the Uncertainties - Toby Maher, MD, MSc, PhD, FRCP
- Live All Group Discussion/Audience Q&A - Maryluz Fuentes, MD; Toby Maher, MD, MSc, PhD, FRCP; Marlies Wijsenbeek, MD, PhD
-
REBROADCAST | PFF Scholars: Presentation of Novel Projects by Early Career Investigators
- Healthcare Professionals
Originally aired on November 12
- Introduction - Michael F. Beers, MD
- PFF Scholar - Gillian Goobie, MD
- PFF Scholar - Bridget Graney, MD
- PFF Scholar - Avraham Unterman, MD
- Live Panel Discussion/Audience Q&A
-
When PF Worsens: Common Cold, Influenza, COVID-19, or Worsening PF?
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
- Transplant Recipients and Individuals Who Lost a Loved One
- Introduction - Jennifer Simokaitis
- The Difference Between Colds, Flu, Influenza, COVID-19 and PF Exacerbations: It’s Difficult! - Rebekah Edwards, DNP, FNP-C
- The Spectrum of Treatment Decisions for Worsening Disease - Rebekah Edwards, DNP, FNP-C
- Preventing Emergency Room and Hospital Admissions: Communicating with Your Care Team - Rebekah Edwards, DNP, FNP-C
- Live All Group Discussion/Audience Q&A - Rebekah Edwards, DNP, FNP-C; Jennifer Simokaitis
-
Exhibit Hall Hours
- Healthcare Professionals
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
- Transplant Recipients and Individuals Who Lost a Loved One
Visit the Exhibit Hall to meet the Sponsors & Exhibitors of PFF Summit 2021. -
Nurse and Allied Health Network (Part Two)
- Healthcare Professionals
Agenda
- 12:00 p.m. - 12:05 p.m. - Welcome
- 12:05 p.m.- 12:10 p.m. - Nurse and Allied Health Network: Working Group Update
- 12:10 p.m.- 12:45 p.m. - Oxygen & Legislation
- 12:45 p.m.- 1:15 p.m. - ILD Specialty Pharmacy
- 1:15 p.m.- 1:35 p.m. - Transition to Transplant, partnering with your Transplant Program
- 1:35 p.m.- 1:45 p.m. - Break
- 1:45 p.m.- 2:05 p.m. - Pulmonary Rehabilitation
- 2:05 p.m.- 2:30 p.m. - Pulmonary Hypertension/ Autoimmune ILD
- 2:30 p.m.- 2:55 p.m. - Research Journey and Inspiration
- 2:55 p.m.- 3:00 p.m. - Closing Comments
-
The Lung Transplant Experience
- Healthcare Professionals
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
- Transplant Recipients and Individuals Who Lost a Loved One
- Introduction - Joyce Lee, MD, MS
- The Lung Transplant Evaluation - Timothy Whelan, MD
- Planning for Your Transplant - Timothy Whelan, MD
- The Lung Transplant Process and Surgery - Timothy Whelan, MD
- How to Navigate Medicare - Maciej “Mike” Bielaczyc, LCSW, CCTSW
- Patient Perspective - Gary Cunningham
- Live All Group Discussion/Audience Q&A - Timothy Whelan, MD; Joyce Lee, MD, MS Maciej “Mike” Bielaczyc, LCSW, CCTSW; Gary Cunningham
-
Community Pulmonologists and ILD Fellows (Part Two)
- Healthcare Professionals
12:00 pm - 4:00 pm CT
Agenda- 12:00 p.m: Welcome, housekeeping, and introductions
- 12:05 p.m. - 12:20 p.m: Understanding CTD / Scleroderma associated ILD
- 12:20 p.m. - 12:35 p.m: Special age population: Workup and care
- 12:35 p.m. - 12:50 p.m: Live audience Q&A for speaker panel
Break #1: 12:50 p.m. - 1:00 p.m.
- 1:00 p.m. - 1:15 p.m: Cryobiopsy in diagnosis of ILD (Coldice and other recent studies)
- 1:15 p.m. - 1:30 p.m: HRCT
- 1:30 p.m. - 1:45 p.m: TBD
- 1:45 p.m. - 2:00 p.m: Live audience Q&A for speaker panel
Break #2: 2:00 p.m. - 2:30 p.m.
- 2:20 p.m. - 2:45 p.m: COVID-19: Prognosis, vaccination, prevention
- 2:45 p.m. - 3:00 p.m: COVID-19: Treatment / therapy, post-COVID state, and management
- 3:00 p.m. - 3:15 p.m: Live audience Q&A for speaker panel
Break #3: 3:15 p.m. - 3:25 p.m.
- 3:25 p.m. - 4:00 p.m: MDD - interesting cases and interactive discussion with live Q&A
-
Nutrition and How it Helps Quality of Life
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
- Transplant Recipients and Individuals Who Lost a Loved One
- Introduction - Kate Gates
- Nutrition, ILD, and Quality of Life - Emilie Klemptner, RD
- Live All Group Discussion/Audience Q&A - Emilie Klemptner, RD; Kate Gates
-
Therapies Under Investigation for PF: What's Coming Down the Pike
- Individuals Living with PF
- Recently Diagnosed Patients and Their Caregivers
- Transplant Recipients and Individuals Who Lost a Loved One
- Introduction - Amy Hajari Case, MD
- The Current Landscape of Active PF-Related Clinical Trials - Toby Maher, MD, MSc, PhD, FRCP
- Live All Group Discussion/Audience Q&A - Toby Maher, MD, MSc, PhD, FRCP; Amy Hajari Case, MD
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