News

  • Sep
    07
    2018

    Protecting Patients Using Supplemental Oxygen

    A group of 20 patient and physician groups submitted comments today regarding the proposed rule on Durable Medical Equipment (DME) and its application to supplemental oxygen. Below is a statement from the seven organizations leading the coalition:
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  • Aug
    10
    2018

    PULMONARY FIBROSIS STATEMENT ON THE PROPOSED SIGNIFICANT NEW RULE TO THE ASBESTOS HAZARD EMERGENCY RESPONSE ACT

    Read Full Article PULMONARY FIBROSIS STATEMENT ON THE PROPOSED SIGNIFICANT NEW RULE TO THE ASBESTOS HAZARD EMERGENCY RESPONSE ACT
  • Jul
    31
    2018

    PATIENT REGISTRY REACHES TARGET ENROLLMENT

    The Pulmonary Fibrosis Foundation (PFF) announced that it has achieved its enrollment goal for the initial phase of the PFF Patient Registry with participation of 2,002 patients. The Registry, launched in 2016, is a collection of comprehensive anonymized data from patients living with pulmonary fibrosis (PF), a group of fatal lung diseases which cause progressive scarring in the lungs.
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  • Jun
    27
    2018

    OXYGEN INFORMATION LINE

    For more than one million people living with serious lung conditions, such as pulmonary fibrosis (PF), a prescription for supplemental oxygen therapy can seem overwhelming. Questions like which oxygen delivery system to use, how to manage various flow settings, or how to ensure safety sometimes cause confusion and stress with the oxygen process.
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  • Jun
    13
    2018

    PFF WALK SUPPORTS PEOPLE AFFECTED BY DEADLY LUNG DISESASE

    The Pulmonary Fibrosis Foundation (PFF) has expanded its annual PFF Walk in Chicago to New York and Washington D.C. to raise awareness and funds in its quest to find a cure for pulmonary fibrosis (PF), a relentlessly progressive group of devastating lung disorders.
    Read Full Article PFF WALK SUPPORTS PEOPLE AFFECTED BY DEADLY LUNG DISESASE
  • Jun
    12
    2018

    SAN ANTONIO ANNOUNCED FOR PFF BIENNIAL SUMMIT 2019

    Patients and caregivers will join physicians, researchers and industry professionals at the JW Marriott San Antonio Hill Country for the Pulmonary Fibrosis Foundation’s (PFF) biennial PFF Summit, Nov. 7-9, 2019.
    Read Full Article SAN ANTONIO ANNOUNCED FOR PFF BIENNIAL SUMMIT 2019