Medical Community

 

PFF Research Funds

The Pulmonary Fibrosis Foundation (PFF) places enormous importance on creating an environment that will assist in the development of effective treatments for pulmonary fibrosis (PF). We are pursuing this by directly funding research, promoting advocacy efforts, encouraging collaborative relations between industry and academic researchers, delivering key communications to patients, and developing solutions to bridge existing gaps in PF research. READ MORE

 

Partnership Grants

The Pulmonary Fibrosis Foundation has partnered with other professional organizations and foundations to support research which improves our understanding of pulmonary fibrosis. READ MORE

 

Leanne Storch Support Group Fund

Named for the Foundation’s former Executive Director who was diagnosed with PF in 2003, the Leanne Storch Support Group Fund honors Leanne’s enduring passion for supporting those affected by pulmonary fibrosis. The Fund was established in 2012 to further enhance the support group experience. READ MORE

 

PFF Summit

Started in 2011 and held biennially, the PFF Summit is an important event for the pulmonary fibrosis community that allows those affected by this devastating disease to learn and exchange ideas. Experts present the most-up-to-date information to patients and caregivers, who are joined a diverse group of physicians, researchers, allied health professionals, and industry representatives. READ MORE

 

PFF Care Center Network

The PFF Care Center Network (CCN) is a growing group of medical centers that have proven experience and expertise in treating patients with fibrotic lung diseases and are dedicated to improving the clinical care of those living with this disease. By sharing knowledge of pulmonary fibrosis, the Network will elevate the standard of care for pulmonary fibrosis patients. READ MORE

 

PFF Patient Registry

The PFF Patient Registry is an electronic database of patient information that has been de-identified, or made anonymous, and is independently managed by a Data Coordinating Center. The Registry collects the same information in a consistent manner from each patient at the nine designated PFF sites.  READ MORE

 

Connect With Patients

Are you looking for ways to better communicate with your pulmonary fibrosis patients? The Pulmonary Fibrosis Foundation provides educational and event planning materials to assist both you and your patients. READ MORE

 
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