PFF Help Center
For those living with pulmonary fibrosis, obtaining the most accurate and current information can be a challenging and frustrating task. Let us help you find your answers.
The PFF Community Registry: Open for enrollment!
The Pulmonary Fibrosis Foundation is leading the fight by funding promising research and we need your help.
One of our key research programs is the PFF Community Registry. We invite eligible participants to join by completing a series of simple surveys. Your survey responses will be used by researchers to better understand how PF and ILD progress over time, respond to treatments, and how the diseases affect individuals. The more individuals who join and provide responses, the closer we come to a cure.
Eligible participants include:
- Patients living with PF and ILD
- Lung transplant recipients who have had PF or ILD
- Caregivers and biological family members of patients with PF or ILD, including those who have passed away
Enrolling in the PFF Community Registry is entirely online. All you need is internet access. Learn more about this groundbreaking program by visiting the PFF Community Registry homepage.
Have you already enrolled? If so, you can log in to access your account.
Be part of
something special
Find an event and connect with others in the PF community.
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Jul262024
Grief Support Group
Join the Grief Support Group virtual meeting on Friday, July 26 from 2:00 - 3:00 p.m. Eastern Time. To receive the virtual meeting information, please contact Jennifer H Singley, MEd, NCC at jennifer@wescoe.org or call 484-553-6340.
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Aug012024
UW Madison Health PF Support Group Meeting | In-Person
Join the UW-Madison PF Support Group meeting in-person on August 1, 2024 from 9 am - 10:30 am CT. Contact Mikal Borg at MBorg@uwhealth.org for more information.
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Clinical Trials
Pulmonary fibrosis patients may find several advantages to joining a clinical trial. Participants may obtain access to a potential new PF medication and receive valuable education about improving their health.
Get involved with the PFF Walk
Join us this year as we walk together toward a cure in Pittsburgh, the NYC Metro area, the San Francisco Bay Area, Chicago, Washington D.C., Dallas, and virtually on National Walk Day!
The Latest News for the PF Community
Explore press releases and articles of interest to PF patients, caregivers and medical professionals.
Read more news →-
June 04, 2024
National Health Organizations Call on Congress to Support Life-Changing Oxygen Reform
Read Full Article National Health Organizations Call on Congress to Support Life-Changing Oxygen Reform -
May 20, 2024
PFF Community Registry Reaches Milestone of 2,000 Participants Impacted by Pulmonary Fibrosis and Interstitial Lung Disease
Read Full Article PFF Community Registry Reaches Milestone of 2,000 Participants Impacted by Pulmonary Fibrosis and Interstitial Lung Disease -
April 02, 2024
Broadway Belts for PFF! 2024 Raises Record $516,000 for Pulmonary Fibrosis Foundation
Read Full Article Broadway Belts for PFF! 2024 Raises Record $516,000 for Pulmonary Fibrosis Foundation
Educational Materials
Find reliable information and trusted resources that can help you learn about pulmonary fibrosis and live better with PF.
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About the PFF
Read our brochure for a snapshot overview of the Pulmonary Fibrosis Foundation. -
Pulmonary Fibrosis Information Guide
Our comprehensive guide provides reliable information about pulmonary fibrosis, the diagnostic process, treatment options, and more. -
Oxygen Basics Booklet
This booklet provides an in-depth overview of the the basics of supplemental oxygen, including equipment, getting started, Medicare information, and traveling.