Patient Support Programs
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PFF Care Center Network
The PFF Care Center Network (CCN) is a group of medical centers nationwide that is dedicated to improving the lives of those living with pulmonary fibrosis (PF) interstitial lung disease (ILD). With proven expertise in diagnosing and treating adult patients with fibrotic lung diseases, PFF CCN sites deliver comprehensive, multidisciplinary patient care, engage in patient-oriented PF research, and work with the PFF to provide educational materials and engage the local community through PFF programs.
PFF Help Center
The PFF Help Center provides patients, caregivers, loved ones, and healthcare professionals with the most up-to-date disease education, communicates the availability of support services, and provides information about essential resources.
To speak with our PFF Help Center Staff, please call 844.TalkPFF (844.825.5733) or help@pulmonaryfibrosis.org
PFF Registry
The PFF Registry is collecting data from patients, caregivers and family members nationwide to support researchers working to diagnose, treat, and potentially cure all forms of pulmonary fibrosis. Together we can fast forward medical research and improve the lives of patients with pulmonary fibrosis.
Support Groups
Connecting with others facing similar experiences can improve emotional well-being and have a positive impact. Support groups offer a place where patients, caregivers, and loved ones can gather and share their experiences. They provide opportunities for education and connection, as well as a valuable source of encouragement and inspiration.
Use our interactive search tool to find a support group near you.
Join a PFF Support Group on Zoom
The PFF hosts three monthly support groups on Zoom for anyone impacted by PF and ILD. You're invited to join! All meetings are held at 1:00 p.m. Central Time on the scheduled day.
PFF Voices
PFF Caring Conversations
PFF Lung Transplant Community Support Group
Open to everyone in the pulmonary fibrosis community on the third Thursday of each month.
Exclusively for those caring for someone with pulmonary fibrosis on the first Tuesday of each month.
For individuals and their loved ones interested in, have had or are awaiting a lung transplant on the fourth Tuesday of each month.
PFF Ambassador Program
The PFF Ambassador program encourages and empowers patients, caregivers, lung transplant recipients, family members, and those who have lost a loved one to serve as a spokesperson for the PF and ILD community. PFF Ambassadors undergo formal training to prepare for speaking and advocating on behalf of the Pulmonary Fibrosis Foundation.
PFF Ambassadors speak at PFF Care Center Network sites, support group meetings, fundraisers, educational events, and many other settings. They represent the PFF and share a message of hope and inspiration to those affected by PF and ILD.
Educational Resources
The PFF is committed to providing quality disease education for the PF and ILD community. We strive to provide patients, caregivers, family members, and healthcare professionals with the resources necessary to more fully understand PF and ILD.
As the leading patient advocacy organization for PF, the Pulmonary Fibrosis Foundation offers a variety of educational resources, including: