Meet the PFF Registry Team
The PFF Registry is developed and managed by a dynamic team comprised of medical experts, PFF staff, and a data coordinating center working in partnership with the Care Center Network across the United States.
By leveraging the data in the Registry and partnering with our Care Center Network sites, we can really start to figure out what are important and essential elements to patient care and learn from one another. I truly believe that we will be able to figure out what care elements/factors will help our patients live better and longer lives with their pulmonary fibrosis.
Joyce Lee, MD, MS
University of Colorado Anschutz Medical Campus,
PFF Senior Medical Advisor, Research and Health Care Quality
Researchers are eager to study the causes, treatments, and impact of pulmonary fibrosis and interstitial lung disease. The Registry follows thousands of people for as long as they are able to participate. This means huge amounts of data are available for researchers to test.
Joseph Lasky, MD
Tulane University Medical School
Our patients living with pulmonary fibrosis, their families who support them, and the health care providers who care for them all deserve high-quality comprehensive data that informs their health decisions. We at the data coordinating center never forget that there is a real person behind every statistic in the PFF Registry, and that knowledge drives us forward every day.
Cathie Spino, ScD
Director of Statistical Analysis of Biomedical and Educational Research (SABER) School of Public Health, University of Michigan
PFF Registry Staff
Kevin Flaherty, MD, MS, Steering Committee Chair PFF Registry
Amy Case, MD, FCCP, Senior Medical Advisor, Education and Awareness *SC
Sonye Danoff, MD, PhD, Senior Medical Advisor, PFF Care Center Network *SC
Joyce Lee, MD, MS, Senior Medical Advisor, Research and Health Care Quality
Jessica Shore, PhD, RN, Senior Vice President, Clinical Affairs & Quality
Scott Staszak, PFF President and Chief Executive Officer
Seth Klein, Chief Development Officer, PFF *SC
SC= Steering Committee SRC= Scientific Review Committee
PFF Registry Steering Committee
Nishant Gupta, MD, Care Center Network Investigator, Director, University of Cincinnati Interstitial Lung Disease program
Lisa Lancaster, MD, Care Center Network Investigator, Associate Professor of Medicine, Vanderbilt Health
Tracy Luckhardt, MD, MS, Care Center Network Investigator, Associate Professor, University of Alabama at Birmingham Medicine
Sydney Montesi, MD, Care Center Network Investigator, Assistant Professor of Medicine, Massachusetts General Hospital
David O'Dwyer, MB, PhD, University of Michigan
Anna Podolanczuk, MD, MS, Weill Cornell
Meredith Broderick, PharmD, Director of Medical Affairs, United Therapeutics
Cindy Burg, PharmD, BCPS Senior Medical Science Director, Genentech
PFF Scientific Review Committee
Kerri Aronson, MD, Cornell Weil
Brand Bemiss, MD, Loyola University of Chicago
Said Chaaban, MD, University of Kentucky
Elizabeth Freiheit, PhD, SABER
Chao He, MD, University of Alabama at Birmingham
Giselle Kolenic, MA, DCC Director of PFF Registry, SABER
Tejaswini Kulkarni, MD, University of Alabama at Birmingham
Chad Newton, MD, University of Texas Southwestern
Aman Pande, MD, Cleveland Clinic
Jessica Shore, PhD, RN, Senior Vice President, Clinical Affairs & Quality
Mary Strek, MD, Interim Chair, Co-Director, Interstitial Lung Disease Clinic, University of Chicago Medicine
Jack Stauffer, MD, Genentech
Srihari Veeraraghavan, MD, Emory University