PF Basics: Info for Newly Diagnosed Patients

If you’ve been diagnosed with pulmonary fibrosis (PF), you may feel over-whelmed. It’s important to know that you are not alone. The Pulmonary Fibrosis Foundation (PFF), the nation’s leading patient advocacy organization for the PF community, has information and resources to help you to learn more about PF and your treatment options. We can also help you find local resources like a pulmonologist, or lung doctor, and a support group.

We’ve designed a series of modules that share the fundamentals people newly diagnosed with PF most want to know. In the first module, we’ll start with answers to common questions about pulmonary fibrosis, including the types of PF, pulmonary fibrosis that runs in families, and the life expectancy of people who live with PF. In later modules, we’ll explore the following:

• MODULE 1: Your Essential Questions Answered
• MODULE 2: Treatment Options
• MODULE 3: Your Medical Care
• MODULE 4: PFF Support and Resources
• MODULE 5: Living with Pulmonary Fibrosis
• MODULE 6: Research and Clinical Trials

We invite you to explore this information in the way that works best for you. You can complete the modules in order or skip around to find the topics that interest you most. Each module contains links to more in-depth resources throughout the PFF website, so you’ll have many opportunities to take a deeper dive into issues you want to learn more about.

Right now, the most important thing we want you to remember is that you’re not alone. The PFF is here for you at every stage of your journey. We can also connect you with other people who have this disease so that you can feel supported and heard.

If you, your family members, or your friends have questions, please call the PFF Help Center at 1.844.825.5733 or email us at help@pulmonaryfibrosis.org.