PFF In The Media

PFF Issues Warning About Non-Prescription Supplemental Oxygen

The PFF warns that patients should not purchase an oxygen supply device without a prescription from a health care provider because doing so may lead to serious health problems. It also warns non-FDA approved oxygen delivery systems may not reliably deliver oxygen.

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PFF Urges Patients to Use Only FDA-Approved Oxygen Devices

The medical advisory board of the Pulmonary Fibrosis Foundation (PFF) has issued a position statement on non-prescription supplemental oxygen, advising the patient community to use only FDA-approved oxygen delivery devices as prescribed by their doctor. The statement says individuals should not purchase an oxygen supply device without a prescription from a healthcare provider because doing so may lead to serious health problems. In addition, non-FDA-approved oxygen delivery systems may not reliably deliver oxygen.

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Pulmonary Fibrosis Foundation Urges Patients to Use Only FDA-Approved Oxygen Delivery Devices - Non-FDA approved oxygen delivery systems may be unreliable

The Pulmonary Fibrosis Foundation has issued a position statement on non-prescription supplemental oxygen. Patients living with pulmonary fibrosis should have a prescription for oxygen from their healthcare provider and should only use FDA-approved oxygen delivery devices.

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Pulmonary Fibrosis Foundation Urges Patients to Use Only FDA-Approved Oxygen Delivery Devices

The statement advises the patient community to use only FDA approved oxygen delivery devices as prescribed by their doctor. Individuals should not purchase an oxygen supply device without a prescription from a healthcare provider because doing so may lead to serious health problems. In addition, non-FDA approved oxygen delivery systems may not reliably deliver oxygen.

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Pulmonary Fibrosis Foundation Urges Patients to Use Only FDA-Approved Oxygen Delivery Devices - WBAY 2

The medical advisory board of the Pulmonary Fibrosis Foundation (PFF), the nation's leading pulmonary fibrosis (PF) research, education, and advocacy organization, has issued a position statement on non-prescription supplemental oxygen.

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Pulmonary Fibrosis Foundation Urges Patients to Use Only FDA-Approved Oxygen Delivery Devices AP News

Pulmonary Fibrosis Foundation Urges Patients to Use Only FDA-Approved Oxygen Delivery Devices PRESS RELEASE: Paid content from PR Newswire May 8, 2023 The Pulmonary Fibrosis Foundation has issued a position statement on non-prescription supplemental oxygen. Patients living with pulmonary fibrosis should have a prescription for oxygen from their healthcare provider and should only use FDA-approved oxygen delivery devices. 1 of 2 The Pulmonary Fibrosis Foundation has issued a position statement on non-prescription supplemental oxygen. Patients living with pulmonary fibrosis should have a prescription for oxygen from their healthcare provider and should only use FDA-approved oxygen delivery devices. Non-FDA approved oxygen delivery systems may be unreliable CHICAGO, May 8, 2023 /PRNewswire/ -- The medical advisory board of the Pulmonary Fibrosis Foundation (PFF), the nation’s leading pulmonary fibrosis (PF) research, education, and advocacy organization, has issued a position statement on non-prescription supplemental oxygen. The statement advises the patient community to use only FDA approved oxygen delivery devices as prescribed by their doctor. Individuals should not purchase an oxygen supply device without a prescription from a healthcare provider because doing so may lead to serious health problems. In addition, non-FDA approved oxygen delivery systems may not reliably deliver oxygen. “Supplemental oxygen therapy is necessary and beneficial to many people living with PF. Oxygen users often prefer portable oxygen concentrators (POC) so they can remain active and mobile. Unfortunately, existing POCs have limitations such as short battery life and inadequate oxygen flow,” said Dr. Amy Hajari Case, Senior Medical Advisor for Education and Awareness for the PFF. “However, non-FDA approved portable oxygen concentrators available online are not the solution. Patients should always speak with their healthcare provider before any out-of-pocket purchase of a portable oxygen concentrator.” ADVERTISEMENT The PFF’s medical advisory board is committed to helping patients who rely on supplemental oxygen. In February, the PFF joined with 23 other patient, professional, and industry groups to advocate for patient-centric legislative changes to supplemental oxygen supply and reimbursement. The PFF’s efforts to advocate for improvements in access to oxygen are ongoing.

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Pulmonary Fibrosis Foundation Urges Patients to Use Only FDA-Approved Oxygen Delivery- Medical Device News Magizine Devices

The medical advisory board of the Pulmonary Fibrosis Foundation (PFF), the nation’s leading pulmonary fibrosis (PF) research, education, and advocacy organization, has issued a position statement on non-prescription supplemental oxygen.

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Using Self-Reported Patient Data to Advance Lung Disease Care

Junelle Speller, vice president of the Pulmonary Fibrosis Foundation (PFF) Registry, is one advocate for the use of self-reported patient data for advancing ILD and PF care. In July, the foundation launched the PFF Community Registry, a subset of its PFF Registry, focused on collecting data via online surveys of patients with PF or ILD, their caregivers and family members, and lung transplant recipients previously diagnosed with PF or ILD.

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Community Registry Grows Research Abilities Of Pulmonary Fibrosis Foundation

In July, the Pulmonary Fibrosis Foundation (PFF) launched the PFF Community Registry to begin collecting data directly from patients in the U.S. with pulmonary fibrosis (PF) and interstitial lung disease (ILD)—together with their nonprofessional caregivers and biological family members—as well as lung transplant recipients previously diagnosed with PF or ILD.

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Being Idiopathic: Solving the Mystery of My Diagnosis

I’ve spent much of my working life conducting investigations. As a special agent for the Air Force Office of Special Investigations and in a second career providing security and investigative services under contract to the federal government, the cases all had similar objectives.

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First-time Pulmonary Fibrosis walk planned in honor of Sand Springs man

A Sand Springs woman is hosting a Pulmonary Fibrosis awareness walk in September in honor of her late husband. Stephanie Hagar wears her husband Michael’s ashes and wedding ring around her neck and has a tattoo in his honor on her wrist.

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Keck Medicine’s Center for Advanced Lung Disease designated as pulmonary fibrosis care center

Keck Medicine of USC’s Center for Advanced Lung Disease has been designated as one of 74 sites included in the Pulmonary Fibrosis Foundation Care Center Network. These sites are recognized for their efforts in diagnosing, treating and providing support to those living with pulmonary fibrosis (PF), a life-threatening lung disease that currently has no cure.

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Pulmonary fibrosis patient makes every breath count

Forrest Reed always felt extremely healthy for a 70-year-old. He did not require any medications, his blood pressure was low and at his annual physical his doctor thought his lungs sounded fine. Then he mentioned a dry, recurring cough he had been experiencing for the past couple of months.

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Pulmonary Fibrosis Foundation’s latest registry offers research opportunities

The PFF Community Registry collects self-reported data from patients, nonprofessional caregivers and biological family members via a secure online portal. Participation is voluntary.

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Pulmonary Fibrosis Foundation’s latest registry offers research opportunities

The Pulmonary Fibrosis Foundation (PFF) has launched the PFF Community Registry to facilitate research on pulmonary fibrosis (PF) and interstitial lung disease (ILD). The PFF Community Registry collects self-reported data from patients, nonprofessional caregivers and biological family members via a secure online portal.

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Pulmonary fibrosis patient makes every breath count

Forrest Reed always felt extremely healthy for a 70-year-old. He did not require any medications, his blood pressure was low and at his annual physical his doctor thought his lungs sounded fine.

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OU Health joins Pulmonary Fibrosis network

Americans living with pulmonary fibrosis, a life-threatening lung disease, have gained access to specialized care through the Pulmonary Fibrosis Foundation’s Care Center Network, which recently announced that six new sites, including OU Health in Oklahoma City, have joined. The goal of the network is to help diagnose, treat, and provide support for more than 250,000 Americans living with pulmonary fibrosis.

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Pulmonary Fibrosis Patient Registry Data Reveal PF, ILD Outcome Variations

Recent studies based on data from the Pulmonary Fibrosis Foundation Patient Registry,1 presented at the American Thoracic Society (ATS) 2022 Conference, “provide important information on potential disparities and differences in the diagnosis, prognosis, and management of patients with pulmonary fibrosis or interstitial lung disease,” said Joyce S. Lee, MD, MS, lead author of 1 of those studies and the senior medical advisor for research and health care quality at the Pulmonary Fibrosis Foundation (PFF).

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