PFF In The Media

https://www.nytimes.com/2019/06/10/health/stem-cells-fda.html

A judicial ruling this month that will stop questionable stem-cell treatments at a clinic in Florida is widely seen as a warning to a flourishing industry that has attracted huge numbers of patients, who pay thousands of dollars for unproven, risky procedures.

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Pulmonary Fibrosis Foundation Warns Against Stem Cell Infusions

In response to an uptick in direct-to-consumer advertising for stem cell therapies by for-profit centers, the Pulmonary Fibrosis Foundation (PFF) has issued an updated warning against any type of stem cell treatment of pulmonary fibrosis (PF) outside of an approved clinical trial.

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See Julie Halston, Lilli Cooper, Santino Fontana, and More at Broadway Belts for PFF!

The Pulmonary Fibrosis Foundation hosted their annual Broadway Belts for PFF! on February 25, hosted by Broadway legend Julie Halston, who will appear on Broadway later this season in Tootsie.

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Pulmonary fibrosis organization creates registry for research

The Pulmonary Fibrosis Foundation has launched its first phase of a patient registry with 2,000 patients on board.

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West Hartford Spreads Awareness of Pulmonary Fibrosis, Delamar Turns Fountain Blue

For several days during the last week of September, the water bubbling out of the fountain in front of the Delamar West Hartford Hotel glowed blue, as the hotel joined other buildings and structures throughout the country in raising awareness for pulmonary fibrosis.

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Interview with Amy Kozyra

Help support those living with pulmonary fibrosis by joining the PFF Walk Chicago on September 15 in Lincoln Park in recognition of Pulmonary Fibrosis Awareness Month.

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After Hours with Rick Kogan: The Pulmonary Fibrosis Foundation

Tonight on the show, Rick is joined by Dorothy Coyle, Amy Kozyra with Dr. Daniel Dilling to talk about the Pulmonary Fibrosis Foundation.

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Talk of Alabama - Pulmonary Fibrosis Awareness

PFF. Ambassador Glenda Rouland and Dr. Tracy Luckhardt share information about pulmonary fibrosis and events taking place during Pulmonary Fibrosis Awareness Month in September.

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How Can I Find the Best Pulmonologist?

Our lungs work hard every day to make sure we're able to do all the things we need to do, extracting oxygen from the air we breathe and sending it onward to cells in every corner of the body.

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Putting the Spotlight on Pulmonary Fibrosis with Julie Halston

It’s a moment Broadway actress Julie Halston will never forget.

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Why investors injected $62 million into a Peninsula biotech targeting a deadly lung disease

Pliant Therapeutics expects to have 50 employees by the end of the year and is recruiting for its first clinical trial.

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In portraying a silver lining to Santa Fe school shooting, news stories mislead public about GoFundMe campaign for victim’s husband

This week news organizations raced to report how the recent Texas school shooting drove an influx of donations to a crowdfunding campaign to finance a stem cell treatment for the husband of one of the victims.

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Spurred by personal tragedy, Jordan Howard seeking to change lives

The Bears’ star running back is more than a bruising football player. He’s a man motivated by previous trials using his platform for a cause close to his heart.

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Meet Bill Schmidt, the new CEO of the Pulmonary Fibrosis Foundation

Meet Bill Schmidt, the new CEO of the Pulmonary Fibrosis Foundation to better understand some of the many ways they are leading the battle against Pulmonary Fibrosis.

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Woman finishes 99 day walk from Wisconsin to Port Aransas

Officially crossing the finish line after 99 days, five states and 14 hundred miles later, 60-year-old Mary Hesch of Stevens Point, Wisconsin was met by all of her family and friends in Port Aransas.

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The Internet Is a Valuable Tool for PF Information, but Always Be Cautious

One of the first sources of reliable information about pulmonary fibrosis (PF) I found was the Pulmonary Fibrosis Foundation (PFF) website. The PFF had curated a collection of resources for patients, caregivers, and the medical community that I found useful.

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