PF Awareness Month

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Every breath, every story

Each September, join with those who have been impacted by pulmonary fibrosis worldwide to unite for Pulmonary Fibrosis Awareness Month (PFAM)! This year, the theme is “Every breath, every story” and we’re showcasing how you, the pulmonary fibrosis community, stand together in the fight against this disease. This year is going to be bigger and better than ever and we want you to participate. And you can do it all right on social media!

Beginning September 1, the PFF will be posting content every day on social media. We need you to like, share, and comment on the content to help the messages reach a wider audience.

One of the first steps you can take is to follow and interact with us on our social media channels. Find us online with our handle @pfforg on Facebook, Twitter, Instagram, and YouTube, and use the hashtags #PFMonth and #BlueUp4PF to start getting social!

Join us this September as we stand together to raise awareness of pulmonary fibrosis.

Keep reading to learn about the different ways YOU can take action in September.


How to get involved

Participate in PFAM by joining us for as many activities as you can. Read more below!


Get informed: Follow the 30 Facts In 30 Days series

One of the best ways to spread awareness about pulmonary fibrosis is to educate others about the impact of this devastating disease. Beginning on September 1 and through September 30, we'll post one daily fact about pulmonary fibrosis on Facebook, Twitter, and Instagram. This campaign provides trusted, medically accurate facts about pulmonary fibrosis. A new fact is shared each day at 11:00 a.m. CT.

Help us spread the message far by liking, sharing, re-tweeting, and commenting on the 30 facts.

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Share your story in the Portraits of PF series

Each day at 1:00 p.m. CT on Facebook, Instagram, and Twitter, the Foundation will post a written story and photo from people living with PF, caregivers, transplant recipients, those who have lost a loved one, and healthcare professionals as a part of the Portraits of PF series on Facebook. These heartfelt stories help others understand the many journeys people affected by PF have experienced.

Strike the lung pose and send us your photo

Strike a pose! We invite you to take a selfie making the the lung pose. To make the pose, join your second knuckles together and place them over your chest. This symbolizes the lungs.

Once we receive your photo, we'll drop it into this year's PFAM template and send it back to you. Then, share the story on your social media accounts to let everyone know you support the PF community.

Don't delay! Lung Pose submissions will close on August 15.

Pictured: Vanessa from last year's PFAM Lung Pose series

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Get a building or landmark to #BlueUp4PF

Take it one step further by getting a local building or landmark in your community to go blue in the #BlueUp4PF activity! If there's a unique building or landmark in your community that can shine blue at night, reach out to the building’s management and ask them to participate by changing their evening lighting to blue.

If you secure a building lighting, be sure to let us know so we can share the news. Blue buildings will be shared on social media in the evenings at 7:00 p.m. CT during September. 

ILD Day

On Wednesday, September 18, the PF community will celebrate the fourth annual ILD Day! This year, you can join ILD Day by registering for a very special webinar presentation called The Journey to Diagnosis: Process, evaluation, and your care team.

The one-hour presentation will include a panel of experts. Registration will open soon!

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Together toward a cure: National Walk Day on September 28

The PFF Walk unites the community in raising funds and awareness for the Pulmonary Fibrosis Foundation. Join us as we walk together toward a cure virtually during Pulmonary Fibrosis Awareness Month!

Bring the spirit of the PFF Walk to your own community. Start your day with an inspiring Mission Moment from the PFF and then gather your family and friends for a walk at the location of your choosing.

Register for yourself or start a team today! Registration is free.

Customize Your Social Media Profile

Raise awareness on social media with a variety of downloadable images. Download these images to your desktop or mobile, upload them to social media, and tell the world why you are raising awareness in September. Need help? Consider using the following language:

This September, I am joining the Pulmonary Fibrosis Foundation. More than 250,000 Americans are living with pulmonary fibrosis and interstitial lung disease. There is no known cure. Join me this month and learn about this disease, help raise awareness, and make a donation to the Foundation at pulmonaryfibrosis.org.  @pfforg #BlueUp4PF #PFMonth

Social Media Downloadables

I am a pulmonary fibrosis hero

I am a pulmonary fibrosis advocate

I am living with pulmonary fibrosis

I am a pulmonary fibrosis lung transplant recipient

I lost someone who lived with pulmonary fibrosis

I love someone who lives with pulmonary fibrosis

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Pulmonary Fibrosis Awareness Month


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Make a Gift

You can show your support to the PF community by making a donation to the Foundation. Throughout the entire month of September, the Foundation welcomes everyone who has been touched by the stories, facts, photos, and more to make a gift to help people everywhere who are living with pulmonary fibrosis.

Thank you to our Pulmonary Fibrosis Awareness Month Sponsors!