You’ve reached the right place

Our mission is to accelerate the development of new treatments and ultimately a cure for pulmonary fibrosis (PF). Until this goal is achieved, the Pulmonary Fibrosis Foundation (PFF) is committed to advancing improved care of patients with PF and providing unequaled support and education resources for patients, caregivers, family members, and health care providers.

The PFF is the largest nonprofit organization dedicated to funding research and advocating for important issues for the PF community. We’re here for you. Keep scrolling or use the navigation at the top of our website to learn more about pulmonary fibrosis and to find resources to support and empower you on this journey.

What are the most common symptoms of pulmonary fibrosis?

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Shortness of breath

Shortness of breath initially occurs with exercise, but as the disease progresses, patients may become breathless while taking part in everyday activities, such as showering, getting dressed, speaking on the phone, or even eating.

Persistent Cough

Low oxygen levels and other causes can trigger cough in some people. People with pulmonary fibrosis can cough up to 200 times per day.

Fatigue

Fatigue is one of the most burdensome symptoms in interstitial lung disease and can have a major impact on quality of life, social interactions, and work capacity.

What does pulmonary fibrosis mean?

The word “pulmonary” means lung and the word “fibrosis” means scar tissue— similar to scars that form on the skin from an old injury or surgery. Pulmonary fibrosis is a process that causes lung scarring, in which fibrotic tissue blocks the movement of oxygen from inside the tiny air sacs in the lungs into the bloodstream.

Pulmonary fibrosis isn’t just one disease. It is a family of more than 200 different lung diseases that all look very much alike. The PF family of lung diseases is part of an even larger group of diseases called interstitial lung diseases (also known as ILD), which includes all of the diseases that have inflammation and/or lung scarring. When the cause of PF is unknown, it’s called idiopathic pulmonary fibrosis (IPF). IPF is the most common type of pulmonary fibrosis.

Our Programs

We are proud to offer all of our programs and services free of charge. No memberships required! Keep scrolling to learn about how we can help you.

The PFF Help Center

A diagnosis of pulmonary fibrosis can leave some people feeling lost and confused. But we’re here to help. Our staff at the PFF Help Center are available to talk with you via phone or email to help guide you through this journey. We can:

  • Help you understand your diagnosis 
  • Answer any general questions you have
  • Help you find a doctor
  • Connect you with support groups
  • Tell you about research studies or volunteer opportunities
  • Provide you with free educational booklets, either as downloadables or mailed to your home

Call our toll free number at 844.TalkPFF or email us at help@pulmonaryfibrosis.org. The call center is open from 9:00 a.m. through 5:00 p.m. Monday through Friday. 

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Find a doctor

When living with pulmonary fibrosis, it’s important to find a doctor who is an expert in treating the disease. For more than 10 years, the Foundation has been proud to partner with 81 hospitals and clinics nationwide through the PFF Care Center Network program. PFF Care Centers provide patients with trusted, professional PF and ILD care. Use our interactive Google map tool to find a doctor near you!

Join a support group

No one needs to go through this journey alone. A support group is a valuable resource that can improve your emotional well-being and have a positive impact on your health. The PFF can connect you with one of more than 150 support groups nationwide. Groups are offered both in-person and virtually. Further, the PFF hosts three monthly support groups on Zoom that everyone is invited to attend.

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Get involved with research

At the PFF, we are dedicated to finding better treatments and a cure for pulmonary fibrosis. Patient participation in research is crucial in aiding researchers to discover new treatments. Our most notable research program is the PFF Community Registry. This program is a series of surveys for all community members affected by PF or interstitial lung disease. Your survey responses will be used for scientific analysis in attempts to better understand how the disease progresses, responds to treatments, and how it affects individuals. Everyone who has been affected by PF is encouraged to enroll. 

 

The PFF also encourages participation in clinical trials. Through the PFF’s Clinical Trial Finder, you can fill out a short questionnaire about your condition to automatically identify trials that are a preliminary match for you. Many studies are actively recruiting volunteers. 

 

Further, the Pulmonary Fibrosis Foundation accepts applications on an annual basis from researchers who are studying pulmonary fibrosis. Upon selection, up to five researchers are awarded the PFF Scholars Grant, a $100,000 award to study the intricacies of the disease.

More resources

Below are just some of the many programs and services we can provide to you. Use the navigation at the top of our website to begin browsing our pages, or visit our educational library.

If you have questions or want to learn more about how we can help you, please contact us at 844.TalkPFF or send us an email.

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Get involved: Take action against pulmonary fibrosis with us!

Are you ready to join the fight for the more than 250,000 Americans who are living with PF? Become a volunteer!

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Start a fundraiser

Whether you want to host a happy hour or make a birthday fundraiser on Facebook, we can help you successfully raise funds for a cure. Learn about our fundraising program, Team PFF. 

 

Join the PFF Walk

There's still time to walk with us in Washington D.C. (October 12), and Dallas (October 19)! Thank you to everyone who has joined us in Pittsburgh, NYC Metro, the Bay Area, Chicago, and National Walk Day. 

Make a donation

Your donation supports research, programming, and services to help people with PF and ILD live longer, healthier lives.

Be part of
something special

Find an event and connect with others in the PF community. 

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  • Nov
    07
    2024

    One Breath Foundation & Support Group Meeting | Virtual

    Join the One Breath Foundation & Support Group for their virtual meeting on Thursday, November 7 at 3 pm PDT via Zoom! Please contact Terri Pilawa at Terri@onebreathfoundation.org for virtual meeting information.

    3:00 PM - 4:00 PM PST
    View Full Details
  • Nov
    12
    2024

    Pulmonary Fibrosis Mid-Missouri Support Group Meeting | In-Person

    Join the Pulmonary Fibrosis Mid-Missouri Support Group for their November meeting on Tuesday, November 12 at 2:00pm Central Time. Please reach out to Judy Frost at alandjudy2004@yahoo.com or 573-823-0008 for additional meeting information.

    Columbia, MO 65203
    2:00 PM - 3:30 PM CST
    View Full Details
  • Nov
    12
    2024

    Living Well with ILD - Education & Discussion | Virtual

    Join the Living Well with ILD support group's Wellness & Peer Support session on Tuesday, November 12 from 1:00 pm - 3:00 pm Pacific Time. Renee Bergtold will speak on Pulmonary Function Test reports, explaining each category's meaning and the percentage reference, and will educate patients on how to read PFT reports.

    1:00 PM - 3:00 PM PST
    View Full Details

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