News

More than 2,000 people have joined the PFF Registry, an online study that's collecting survey data from people affected by pulmonary fibrosis.

New research from the PFF Registry explores access and the quality of care among people living with pulmonary fibrosis.

The Pulmonary Fibrosis Foundation (PFF), has announced registration is now open for the virtual PFF Summit, Nov. 8-13, 2021 at pffsummit.org.

The Pulmonary Fibrosis Foundation (PFF), the nation’s leading pulmonary fibrosis education and advocacy organization, has launched a new website, pulmonaryfibrosis.org, for the more than 200,000 Americans impacted by pulmonary fibrosis (PF).

The Pulmonary Fibrosis Foundation and Paradigm Medical Communications, LLC (Paradigm) have announced a collaborative partnership to design and implement a curriculum of continuing medical education (CME) activities in interstitial lung disease (ILD).

Jordan Howard, 22-year-old lead rusher for the Chicago Bears, will announce his commitment to fight pulmonary fibrosis (PF) at the 2016 Pulmonary Fibrosis Foundation’s (PFF) Volunteer Meeting. Howard lost his father, Dr. Reginald B. Howard, to PF at age 52 after a nine-year battle.

Evans Wilson will not let his diagnosis of pulmonary fibrosis (PF) keep him from reaching the finish line. This Sunday, November 27th, Evans will take on the challenge of the Seattle Marathon, a 26.2 mile quest and an opportunity to fundraise for charitable causes.

The PFF Patient Registry is a comprehensive research tool available in the fight against pulmonary fibrosis.

Tune in! PFF's President and CEO, Patti Tuomey, explains PF and the PFF's efforts on Chicago's Sports Radio, 670 The Score.

The PFF is using this high-visibility billboard campaign to generate awareness and inspire new supporters of the PF community with Chicago Bear Jordan Howard.

Howard is launching a campaign to commemorate the 10-year anniversary of his father’s death with a fundraising challenge to benefit the Pulmonary Fibrosis Foundation (PFF). The campaign asks individuals to donate $10, then to recruit 10 people to donate $10 to help support the PFF's efforts to find a cure. Howard will personally match the first $10,000 donated to the campaign.

7th Annual Benefit in Memory of Michael Kuchwara on Monday, February 27 at the Edison Ballroom Sets Record in Fight Against Pulmonary Fibrosis

On Friday, Feb. 24, 2017, Jordan Howard, Chicago Bears record-breaking rookie rusher, presented a $10,000 check payable to the Pulmonary Fibrosis Foundation (PFF) in memory of his father, Dr. Reginald B. “Doc” Howard.

PFF champion Jordan Howard joins an elite list of players who have received the Brian Piccolo award.

One thousand patients living with pulmonary fibrosis (PF), a progressive and deadly lung disease, have enrolled in the Pulmonary Fibrosis Foundation’s (PFF) Patient Registry, a ground-breaking study tracking data from PF patients across the country.

Four-time World Series champion Bernie Williams joined in the Pulmonary Fibrosis Foundation’s (PFF) recent advocacy session with Capitol Hill legislators to explain how the deadly lung disease is impacting families and communities across the nation.

Although a vote has been delayed, the Senate Better Care Reconciliation Act (BCRA), the latest plan to repeal and replace the Affordable Care Act, remains a threat to the pulmonary fibrosis community. This bill, or a similar version of it, will likely be considered again when the Senate returns to session on Monday, July 10.

The board of directors of the Pulmonary Fibrosis Foundation (PFF) has named William T. Schmidt as the next President and CEO, effective August 14, 2017.

The Pulmonary Fibrosis Foundation (PFF) will launch its inaugural PFF Walk on Sept. 9 in Chicago’s Lincoln Park to raise awareness and funds in its battle against the deadly lung disease, pulmonary fibrosis (PF).

The Pulmonary Fibrosis Foundation (PFF), the nation’s leading pulmonary fibrosis advocacy organization, has partnered with the Willis Tower and iconic buildings and structures across the country to feature blue lighting in celebration of Pulmonary Fibrosis Awareness Month. The Willis Tower will light up blue on September 1-3.

Nearly 1,000 patients, families, caregivers and health care professionals from 40 states joined the Pulmonary Fibrosis Foundation’s (PFF) inaugural PFF Walk on Sept. 9.

Senate leadership announced yesterday that it will not proceed with the proposed Graham-Cassidy bill. As with previous efforts to repeal and replace the Affordable Care Act, this legislation would have posed a serious threat to our community and reduced health care availability for millions of Americans.

The Pulmonary Fibrosis Foundation (PFF), the nation’s leading pulmonary fibrosis (PF) advocacy organization, has announced its keynote speakers for the upcoming PFF Summit 2017. The biennial meeting will take place Nov. 9-11, at the Omni Nashville Hotel in Nashville, Tenn.

The United States Senate unanimously voted to declare September 2017 Pulmonary Fibrosis Awareness Month.

WASHINGTON, Nov. 14, 2017 /PRNewswire-USNewswire/ -- On behalf of millions of Americans with rare diseases, a coalition of 36 patient organizations united to oppose the Senate's proposed weakening of the Orphan Drug Tax Credit as part of the Tax Cuts and Jobs Act.

Physicians and researchers presented the latest scientific research into the numerous types of pulmonary fibrosis (PF), giving hope to nearly 900 patients, caregivers, and industry professionals at the Pulmonary Fibrosis Foundation’s (PFF) biennial PFF Summit last week in Nashville, Tenn.

Howard Honors Memory Of His Father In NFL’s My Cause, My Cleats Campaign

Paul Fogelberg, longtime PF advocate and Director of Pulmonary Fibrosis Advocates, which is now working with the Pulmonary Fibrosis Foundation, and Sen. Amy Klobuchar, D-Minn., were honored at the Everylife Foundation for Rare Diseases Rare Voice Awards ceremony on November 5 in Washington D.C.

The Pulmonary Fibrosis Foundation (PFF) is pleased to announce that video recordings of sessions from the PFF Summit 2017 are now available to view online at the Foundation’s official Youtube page.

Better care comes closer to home for patients with deadly lung disease. Pulmonary Fibrosis Foundation invites medical centers to join Care Center Network.

Hosted by the one-and-only actress/comedienne Julie Halston, BROADWAY BELTS FOR PFF! will celebrate its eighth annual fundraiser, featuring Broadway stars in an evening of music and comedy benefitting the Pulmonary Fibrosis Foundation.

The Pulmonary Fibrosis Foundation (PFF) has launched a new Clinical Trial Finder, the first one of its kind for patients living with the deadly lung disease.

The Pulmonary Fibrosis Foundation (PFF), the nation’s leading pulmonary fibrosis (PF) education and advocacy organization, has named Pauline Bianchi, RN, BSN, veteran nurse and pharmaceutical industry expert, as Vice President of Research and Development.

The Pulmonary Fibrosis Foundation (PFF) announced that its annual Broadway Belts for PFF! raised a record-breaking $350,000, bringing its eight-year fundraising total to nearly $1.2 million.

Patients and caregivers will join physicians, researchers and industry professionals at the JW Marriott San Antonio Hill Country for the Pulmonary Fibrosis Foundation’s (PFF) biennial PFF Summit, Nov. 7-9, 2019.

The Pulmonary Fibrosis Foundation (PFF) has expanded its annual PFF Walk in Chicago to New York and Washington D.C. to raise awareness and funds in its quest to find a cure for pulmonary fibrosis (PF), a relentlessly progressive group of devastating lung disorders.

For more than one million people living with serious lung conditions, such as pulmonary fibrosis (PF), a prescription for supplemental oxygen therapy can seem overwhelming. Questions like which oxygen delivery system to use, how to manage various flow settings, or how to ensure safety sometimes cause confusion and stress with the oxygen process.

The Pulmonary Fibrosis Foundation (PFF) announced that it has achieved its enrollment goal for the initial phase of the PFF Patient Registry with participation of 2,002 patients. The Registry, launched in 2016, is a collection of comprehensive anonymized data from patients living with pulmonary fibrosis (PF), a group of fatal lung diseases which cause progressive scarring in the lungs.

A group of 20 patient and physician groups submitted comments today regarding the proposed rule on Durable Medical Equipment (DME) and its application to supplemental oxygen. Below is a statement from the seven organizations leading the coalition:

Leading organizations recognize CMS’s acknowledgement, but disappointed it did not use its statutory authority to improve the lives and treatment for Americans who require supplemental oxygen

Responsum for PF features a searchable database of over 500 article summaries, curated for the pulmonary fibrosis community.

The medical advisory board of the Pulmonary Fibrosis Foundation, the nation’s leading patient education and advocacy organization representing the more than 200,000 Americans with pulmonary fibrosis, has issued an updated statement on the use of stem cell/cell-based therapies.

The Pulmonary Fibrosis Foundation’s PFF Summit, the world’s largest healthcare conference on pulmonary fibrosis (PF), will unite the PF community and provide the latest on research and care, including how precision medicine via DNA sequencing and targeted treatments may lead to better outcomes.

The Pulmonary Fibrosis Foundation announced data from four studies exploring the symptoms and treatments associated with this progressive and debilitating form of lung disease.

The Pulmonary Fibrosis Foundation announced David Lederer, M.D., M.S., Senior Medical Advisor for Education and Awareness, was honored with the John W. Walsh PAR Award for Excellence on Sunday, May 19, at the American Thoracic Society International Conference in Dallas.

Pulmonary Fibrosis Foundation’s Care Center Network Expands To 33 States

Commit To Drive Disease Awareness, Expand Research And Patient Advocacy

The Pulmonary Fibrosis Foundation announced the launch of PRECISIONS, a study that aims to transform the diagnosis and treatment of idiopathic pulmonary fibrosis (IPF), by moving it into the era of precision medicine.

The Pulmonary Fibrosis Foundation (PFF) today announced that 59 pulmonary fibrosis (PF) support groups nationwide received grants from the 2019 Leanne Storch Support Group Fund. The Fund is sponsored by Boehringer Ingelheim and Genentech, a Roche company. Named for the PFF’s former executive director who was diagnosed with PF in 2003, the Leanne Storch Support Group Fund honors her passion for supporting those affected by the disease.

Multi-Tony Award-Winner, Bernadette Peters (Hello, Dolly!, Follies, A Little Night Music), along with New York’s theatrical community, will raise funds and awareness for pulmonary fibrosis (PF), a debilitating lung disease, in the 10th annual Broadway Belts for PFF!

Pulmonary Fibrosis Foundation National Awareness Survey reveals little understanding of disease in advance of Rare Disease Week.

The Pulmonary Fibrosis Foundation and Celgene Corporation, a wholly owned subsidiary of Bristol-Myers Squibb Company, have created a consortium called PROLIFIC (Prognostic Lung Fibrosis Consortium) to develop well-qualified assays to detect important peripheral blood protein biomarkers in patients with pulmonary fibrosis. The assays will be used to uncover early indicators of a drug’s activity.

The Pulmonary Fibrosis Foundation medical team is actively monitoring the evolving outbreak of the COVID-19 coronavirus to evaluate the potential health implications for the pulmonary fibrosis (PF) community in the USA.

The Pulmonary Fibrosis Foundation medical team is actively monitoring the evolving outbreak of the COVID-19 coronavirus to evaluate the potential health implications for the pulmonary fibrosis (PF) community in the USA. Read our Guidance Statement here.

To limit or prevent the spread of COVID-19, several recommendations have been suggested by the Centers for Disease Control (CDC). Read our FAQ for pulmonary fibrosis patients.

CMS guidelines for supplemental oxygen adjusted to protect patients during COVID-19 crisis

Pulmonary fibrosis patients are at high-risk of complications related to COVID-19 and need protections that reduce their chance for exposure to the virus. At the same time, many pulmonary fibrosis patients rely on pulmonary rehabilitation (PR) services. PR has been shown to improve many PF patients’ exercise capacity and health-related quality of life. Because there are limited treatment options for PF, pulmonary rehabilitation is all the more essential for helping to maintain PF patients’ health.

The Pulmonary Fibrosis Foundation (PFF) announced the appointment of three highly respected pulmonologists as senior members of its medical team. The new team members are: Dr. Amy Hajari Case of Piedmont Healthcare (Atlanta); Dr. Sonye Danoff of the Johns Hopkins University School of Medicine (Baltimore); and Dr. Joyce Lee of the University of Colorado Anschutz Medical Campus (Aurora). They will bring a combined 40-plus years of expertise in treating individuals with interstitial lung disease (ILD).

The Pulmonary Fibrosis Foundation is committed to its mission to drive research and act as the trusted resource for individuals afflicted with pulmonary fibrosis. We exist to serve people of every race and background, and we know that the suffering resulting from PF is often accompanied by other painful hardships borne by patients and their loved ones.

September marks Pulmonary Fibrosis Awareness Month, presented by the Pulmonary Fibrosis Foundation (PFF) to spread the word about pulmonary fibrosis (PF), a progressive, incurable lung disease with different causes affecting more than 200,000 people in the U.S. While more than 50,000 new cases are diagnosed annually, awareness of PF symptoms, which include shortness of breath, fatigue and a dry, hacking cough, remains very low for a vast majority (86%) of Americans, according to the PFF.

The Pulmonary Fibrosis Foundation (PFF), the nation’s leading pulmonary fibrosis (PF) patient education and advocacy organization, has appointed actress and comedienne, Julie Halston, to its Board of Directors.

From the Columbia Center in Seattle to Yonkers City Hall in New York, iconic landmarks in cities across the country will shine with the signature blue color of the Pulmonary Fibrosis Foundation to put a spotlight on the devastating lung disease.

The Pulmonary Fibrosis Foundation (PFF) has developed a new logo, which features powerful lettering with an abstract pair of lungs in the organization’s signature teal and green colors.

Thomas E. Hales, 83, passed away peacefully surrounded by​ his wife of 60 years and the love of his life, Alice Marie (Power) Hales, his six children and his grandchildren, on Thursday, October 8, 2020 in Baltimore, Maryland.

The Pulmonary Fibrosis Foundation today announced the “Pinpoint PF” education and awareness campaign aimed at individuals with symptoms and at a higher risk for pulmonary fibrosis (PF).

The Pulmonary Fibrosis Foundation (PFF) is announcing that 2019 PFF Scholar, Dr. Jeremy Katzen at the University of Pennsylvania, a PFF Care Center Network site, has received a National Institutes of Health (NIH) K08 award.

The Pulmonary Fibrosis Foundation (PFF), the nation’s leading pulmonary fibrosis (PF) education and advocacy organization, announces the departure of Chief Medical Officer (CMO) Gregory P. Cosgrove, MD who will join Pliant Therapeutics, a clinical stage biopharmaceutical company focused on discovering and developing novel therapies for the treatment of fibrosis and related disease, as Vice President, Clinical Development (IPF), effective December 31, 2020.

In accordance with Recommendations issued by the Centers for Disease Control and Prevention, the Pulmonary Fibrosis Foundation strongly encourages vaccination for COVID-19, as the benefits far outweigh the risks. The two authorized vaccines have been demonstrated to be safe and extremely effective in preventing COVID-19 and/or limiting the development of severe COVID-19.

The Pulmonary Fibrosis Foundation announced enrollment of the first patient in PRECISIONS ​(Prospective tReatment EffiCacy in IPF uSIng genOtype for Nac Selection) clinical trial. This is the first clinical trial to apply the principles of precision medicine to the treatment of patients with idiopathic pulmonary fibrosis (IPF).

The PFF has announced United Therapeutics’ sponsorship of the PFF Registry, a research resource that tracks clinical data, blood samples and patient-reported outcomes from individuals living with PF nationwide.

Broadway stars on a mission to raise funds and awareness for pulmonary fibrosis (PF) will take the stage virtually for the first time in the Pulmonary Fibrosis Foundation’s (PFF) 11th annual Broadway Belts for PFF! on Friday, March 12, at 7 p.m. ET.