PFF Launches Education Program For Newly Diagnosed Patients
The Pulmonary Fibrosis Foundation (PFF), the nation's leading pulmonary fibrosis (PF) research, education and advocacy organization, has unveiled an educational resource aimed at guiding and supporting individuals newly diagnosed with pulmonary fibrosis and interstitial lung disease (ILD). "PF Basics: Info for Newly Diagnosed Patients" is a curated online program that answers patients' most pressing questions about these diseases.
The PFF encourages newly diagnosed patients to explore the six modules of PF Basics at their own pace, based on their individual interests. The first covers fundamental information and answers to common questions such as such as "what is the life expectancy for people with PF?" and "is PF a genetic disease?". Subsequent modules address treatment options, medical care, support resources, living with PF, and the latest in research and clinical trials. Each module features patient stories and provides links to comprehensive resources on the PFF website.
PF Basics: Info for Newly Diagnosed Patients was developed with the expertise of the PFF medical team and input from the patient community. The program is designed to help patients understand and prioritize key steps to take during the crucial months after diagnosis. By integrating medical knowledge with real-world patient experience, this program offers the support and guidance needed to navigate this important phase of care with confidence.
More than 250,000 Americans are living with pulmonary fibrosis (PF) and interstitial lung disease (ILD). These disorders are characterized by varied amounts of inflammation, scarring, or both, that damage the ability of the lung to absorb oxygen. The prevalence of PF is on the rise with more than 50,000 new cases diagnosed annually.