August 05, 2021
Have You Enrolled in the PFF Registry?
Since 2016, the PFF Registry has enrolled and followed the care of thousands of patients with pulmonary fibrosis (PF) within the PFF Care Centers. Now, the PFF Registry will expand to capture more participants in various care settings and regions across the United States. The PFF Care Center Registry will maintain enrollment of 2,000 patients. The new PFF Community Registry will capture directly from participants, and will allow for unlimited enrollment. These data will offer insight on the experience of patients, including those who have had a lung transplant, as well as caregivers and family members, and help to facilitate much needed research to improve care and outcomes. We invite you to join and help advance research on this devastating disease.