News
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Nov052018
Oxygen Patient's - Needs Not Being Addressed in CMS’s Final Rule
Leading organizations recognize CMS’s acknowledgement, but disappointed it did not use its statutory authority to improve the lives and treatment for Americans who require supplemental oxygenRead Full Article Oxygen Patient's - Needs Not Being Addressed in CMS’s Final Rule -
Oct152018
WANTED: EARLY STAGE INVESTIGATORS FOR NEW PULMONARY FIBROSIS MENTORING PROGRAM
Read Full Article WANTED: EARLY STAGE INVESTIGATORS FOR NEW PULMONARY FIBROSIS MENTORING PROGRAM -
Oct102018
Thousands Of Americans Have Pulmonary Fibrosis, Many Not Diagnosed
Read Full Article Thousands Of Americans Have Pulmonary Fibrosis, Many Not Diagnosed -
Sep072018
Protecting Patients Using Supplemental Oxygen
A group of 20 patient and physician groups submitted comments today regarding the proposed rule on Durable Medical Equipment (DME) and its application to supplemental oxygen. Below is a statement from the seven organizations leading the coalition:Read Full Article Protecting Patients Using Supplemental Oxygen -
Aug102018
PULMONARY FIBROSIS STATEMENT ON THE PROPOSED SIGNIFICANT NEW RULE TO THE ASBESTOS HAZARD EMERGENCY RESPONSE ACT
Read Full Article PULMONARY FIBROSIS STATEMENT ON THE PROPOSED SIGNIFICANT NEW RULE TO THE ASBESTOS HAZARD EMERGENCY RESPONSE ACT -
Jul312018
PATIENT REGISTRY REACHES TARGET ENROLLMENT
The Pulmonary Fibrosis Foundation (PFF) announced that it has achieved its enrollment goal for the initial phase of the PFF Patient Registry with participation of 2,002 patients. The Registry, launched in 2016, is a collection of comprehensive anonymized data from patients living with pulmonary fibrosis (PF), a group of fatal lung diseases which cause progressive scarring in the lungs.Read Full Article PATIENT REGISTRY REACHES TARGET ENROLLMENT