News

Better care comes closer to home for patients with deadly lung disease. Pulmonary Fibrosis Foundation invites medical centers to join Care Center Network.

The Pulmonary Fibrosis Foundation (PFF) is pleased to announce that video recordings of sessions from the PFF Summit 2017 are now available to view online at the Foundation’s official Youtube page.

Paul Fogelberg, longtime PF advocate and Director of Pulmonary Fibrosis Advocates, which is now working with the Pulmonary Fibrosis Foundation, and Sen. Amy Klobuchar, D-Minn., were honored at the Everylife Foundation for Rare Diseases Rare Voice Awards ceremony on November 5 in Washington D.C.

Howard Honors Memory Of His Father In NFL’s My Cause, My Cleats Campaign

Physicians and researchers presented the latest scientific research into the numerous types of pulmonary fibrosis (PF), giving hope to nearly 900 patients, caregivers, and industry professionals at the Pulmonary Fibrosis Foundation’s (PFF) biennial PFF Summit last week in Nashville, Tenn.

WASHINGTON, Nov. 14, 2017 /PRNewswire-USNewswire/ -- On behalf of millions of Americans with rare diseases, a coalition of 36 patient organizations united to oppose the Senate's proposed weakening of the Orphan Drug Tax Credit as part of the Tax Cuts and Jobs Act.