News

WASHINGTON, Nov. 14, 2017 /PRNewswire-USNewswire/ -- On behalf of millions of Americans with rare diseases, a coalition of 36 patient organizations united to oppose the Senate's proposed weakening of the Orphan Drug Tax Credit as part of the Tax Cuts and Jobs Act.

The United States Senate unanimously voted to declare September 2017 Pulmonary Fibrosis Awareness Month.

The Pulmonary Fibrosis Foundation (PFF), the nation’s leading pulmonary fibrosis (PF) advocacy organization, has announced its keynote speakers for the upcoming PFF Summit 2017. The biennial meeting will take place Nov. 9-11, at the Omni Nashville Hotel in Nashville, Tenn.

Senate leadership announced yesterday that it will not proceed with the proposed Graham-Cassidy bill. As with previous efforts to repeal and replace the Affordable Care Act, this legislation would have posed a serious threat to our community and reduced health care availability for millions of Americans.

Nearly 1,000 patients, families, caregivers and health care professionals from 40 states joined the Pulmonary Fibrosis Foundation’s (PFF) inaugural PFF Walk on Sept. 9.

The Pulmonary Fibrosis Foundation (PFF), the nation’s leading pulmonary fibrosis advocacy organization, has partnered with the Willis Tower and iconic buildings and structures across the country to feature blue lighting in celebration of Pulmonary Fibrosis Awareness Month. The Willis Tower will light up blue on September 1-3.